2AM crashing head...

Woke up at 2am with my head crashing. These things won't even let you sleep. I don't believe life was meant to be lived in this way. These things (migraines) have taught me something. Life is pain. Whenever I see someone out there in the world functioning I wonder if they know how fortunate they are to have their health. I honestly feel they take it for granted. Most complain about things that are so insiginificant in the scheme of things. If they only knew.....

Gail,

So sorry you're having a rough day. I know, I'm having one too but I woke up with it and it's gotten worse then is somewhat better (pain has gone down a bit). I know, I get jealous of others being able to function normally and wish to be like that again. I also have limited tolerance for others complaining how hard normal life is...lets add a chronic pain condition to that life and see how you do....

I'm finally over the migraine part of my misery. After 5 days I was beginning to get pissed. It will pass. You will have some days when you feel better. Those out there who are blessed with good health have no idea how good they have it. I also have little tolerance for whiners. Sometime I just want to scream at them to shut the **** up! Which I do at my TV on many an occasion.

I am having a really bad day myself. I woke up this morning with one of my huge thumpers (they are rare now because of the topamax but when they come they are HORRIBLE!) after 2 days of medium severity migraines. I read your post and sympathize. Can't sleep, can't rest, can't lay down...it hurts worse. Half of my life I am fighting the pain with drugs and I can't win the battle. It hurts. I just want to cry and be hugged and coddled and cry. I want my mom and you know thats when things get bad. For people who know me on the forum, they know my mom is not a valid option when it comes to this disease.

Instead of getting mad that I have to live like this, every time it gets this bad I try and think back to my specialists office. In that office there are several neurologists that specialize in all sorts of disorders and they all share a waiting area.

Waiting there was hell, I sat there for 1 1/2 hours before my first appointment and I was scared and uncomfortable because I have never seen sicker people in my life. They weren't just sick though...they all had really bad neurological issues. I was the only "normal" sick person in there.

One older woman in particular stands to mind. She was in a wheel chair with a blanket yelling out, "I'm so sad. I'm so sad, I can't walk. God, I can't walk. I'm in so much pain and I can't do anything. Why, God, Why?" Over and over again.

Other people simply weren't aware of their conditions but there were several people that I saw and thought, "My goodness, I am blessed...with migraines and all..I am truly blessed." To this day I still think that and revert back to the memories I have of that office whenever I have a bad day. It helps keep me a little more positive..I hope maybe it will help you guys too.

Feel better everyone. I hope all of this just stops one day. Sooner rather than later. I am thinking of you all.

Hope you get to have some relief soon.

Lovegia - You said that you are on Topamax and when a migraine does come it is HORRIBLE. Did you notice them to be worse than before Topamax? I'm not talking the frequency--obviously you wouldn't be taking it if they weren't helping. I mean the actual pain level.I'm asking because when I was on it I went 2 weeks without one (usually a 2-3 a week person), but when I did get one I thought I would die. It was worse than I have ever had (didn't think that was possible).

estre004 wrote:Lovegia - You said that you are on Topamax and when a migraine does come it is HORRIBLE. Did you notice them to be worse than before Topamax? I'm not talking the frequency--obviously you wouldn't be taking it if they weren't helping. I mean the actual pain level.I'm asking because when I was on it I went 2 weeks without one (usually a 2-3 a week person), but when I did get one I thought I would die. It was worse than I have ever had (didn't think that was possible).

No Estre, I have gotten worse auras/predrome (sp?) though. I have almost passed out on the floor and had new visuals but my disease has also been rapidly progressing. I don't know if it would have just gotten worse without the topamax anyways. I am NOT taking myself off to find out. This has just gotten chronic for me after my daughters birth. I was a 1-2X a month sufferer before that, hormonal.

The pain has changed but not gotten worse. It has gotten less severe but they are now eyeball migraines...I hate them. I think, however..because they have became chronic makes them more difficult to deal with. I often curl up in a ball when nobody is looking and cry thinking I just want a hug and someone to know how to make me feel better. Nobody in the world knows how to take care of a migraineur. It is so misunderstood. Meanwhile, if your throwing up with a virus...you are soothed and cared for. I am sick all the time and everyone gives up. I am trying to stay positive but today I am having a hard day. Wish we could all meet up and have a hug. I'd like that.

Thanks Kate for the well wishes, I hope you are having a good day today.

Lovegia- wish I could give you a hug. Maybe we should all move to an island.

thanks estre...I wish. maybe some day. Somebody has to win the lotto on here eventually..right? Buy us all an island..


Come on lucky Rondas! Win it big!

A big hug to you Lovegia. I hope, by now, that the worst has passed.