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re: photos and how normal everyone looks..

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jeselle
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Post  Guest Sat Mar 06, 2010 11:27 am

I notice that some have photos of themsevles with their posts. I can't helpbut see how 'normal' everyone looks. You would never know how much pain is within. I think perhaps that this is the reason it is so difficult to get across how much pain we're in. Speaking for myself when I am in the worst of it nobody see's me. So nobody truly 'gets' it. Any thoughts?

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Post  dcook60 Sat Mar 06, 2010 12:16 pm

the reason i look so normal in my picture with my posts is that it isn't me!
the picture posted is of my 39-year old daughter, with her cute dog. i used to look like she does, more or less. now, i'm just an older, white-haired and wrinklier version.

people often say i look "good". i don't believe them, of course, because i don't feel good at all. still, it's better than being told one looks like hell, isn't it?

when i'm at my pain-filled worst, there is no mistaking me for looking anything like good. but i'm glad people on the street don't stop and tell me i look like i'm at death's door. that would be much worse, imho. dianne
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Post  Paradox Sat Mar 06, 2010 12:33 pm

I don't take photo's when I'm not well. I simply can not tolerate the flashes, even on good days, so we don't have many photo's of me in the past few years.

Charlotte
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Post  Guest Sat Mar 06, 2010 12:57 pm

Oh, that's not you! Oh well, your daughter looks good then!! ha ha

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Post  pen Sat Mar 06, 2010 1:15 pm

My picture is the British Isles covered in snow.
Believe me that looks better and more normal than me.

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Post  sherri b Sat Mar 06, 2010 4:15 pm

I think it's kinda like facebook or any other public thing, People let you see what they want you to see.

I was having a good day, (below zero temperatures are good for my migs.) that's why I put this one on here, and my dog brings me such joy, even in the midst of it, he lays with me and cuddles and knows when I am hurting.
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Post  HeelerLady Sat Mar 06, 2010 5:43 pm

Well sorry to say...I'm not a dog. Razz I feel like I've been run over by a pack of them often. I just haven't had enough good days to feel up to taking a recent photo. I have figured out my digital camera but don't want to show this face to the world.
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Post  dcook60 Sat Mar 06, 2010 5:53 pm

aha, so i'm not the only one who has a digital camera and can't face learning how to use it!!

my youngest son gave me one for xmas. i had told everyone i DID NOT want one, but he thought i should have something better than my cell phone and disposable cameras.

well......it's into march and i haven't even looked at it yet. son doesn't live here, but daughter will (someday) teach me how to use it, when i feel up to learning a new "thing" and reading a book about it.

for gosh's sake, even the toaster i got for xmas has a book one must read to learn how to use the dratted thing. dianne
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Post  LillianLovato27 Mon Mar 08, 2010 5:22 pm

Well, I see your point. I find it hard, because I'm like the quiet one out of my friends (well not that quiet with my close friends). I try to smile and have a good time with them, because I do not want to think about M's.

So when people see me. I don't look like I'm in pain. They don't see me as a girl with a 'medical condition' or 'problem'. It's hard, when I'm hurting and they think I'm just having a hard/bad day.

My picture is not of me, but I photo of a wood plaque that says "Believe in yourself and all things are possible". It's my personal motto.
I don't know where I got it from, or how long I had it, but it's been with me hanging on my wall through the good and bad times for as long as I can remember.

study Lillian
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Post  Guest Mon Mar 08, 2010 6:08 pm

My picture's not of me either Wink but it's kinda how I feel somedays. I picked the picture because on bad days inside my head is the old swollen "block of cheese" and the meds make my thinking kinda fuzzy. I'm a forum admin elsewhere and learned early on that posting real pictures can lead to problems...the copy - paste kind, so I tend to shy away from it. If it works for some people, all the better Smile

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Post  Ivy Tue Mar 09, 2010 2:30 am

Of course my avatar picture is not me Very Happy
I put a penguin because they in the cold and cold is the best thing for my migraine.
I think that no one would ever put a picture of him/herself during a migraine Mad
We look so scary What a Face
Bye
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Post  sherri b Tue Mar 09, 2010 6:12 am

Funny, cold helps me when I get a migraine sometimes to, in the winter when I have one that isn't to bad yet, I try to get out and go for a little walk, sometimes it helps, sometimes it doesn't.

I actually think people don't know the real me. I am usually always medicated or in pain and am pretty quiet when I do get out amongst people. Weird huh?
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Post  Anna Tue Mar 09, 2010 6:26 am

sherri b wrote:I actually think people don't know the real me. I am usually always medicated or in pain and am pretty quiet when I do get out amongst people. Weird huh?

Yes, that's how I feel.

My picture is me, but I don't often stand on my head. If there is pain this is a sure fire way to make it a lot worse. I guess I just like the picture.
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Post  jeselle Tue Mar 09, 2010 7:09 am

from my experience with my family I have come to believe that people do not want to know. Most people. And also, we put up a good front and a good mask. None of the people at work know I have most days a migraine b/c I smile and appear cheerful when that is the last thing I feel. It makes me feel like I'm living a lie though. And when my family calls and we talk and I say nothing about the pretty much 24/7 migraine, it's upsetting b/c I don't have to rant about it, but it takes up so much of my life but nothing is said. But it's why I don't have a lot to say. Sure, I can get to work (by sheer will) and keep my house and husband, but that's about it. There's no more energy for anything else.
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Post  sherri b Tue Mar 09, 2010 7:13 am

I understand completely! Thank goodness we are slow at work right now and I am only required to make it 2 days a week now, (last week had to call off one of them) but it is a battle and a struggle everyday....
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Post  Almostangela Tue Mar 09, 2010 8:18 am

Paradox - Charlotte - I LOVE your bear picture! I have one on my desktop where the bear has found a small mound of icy-snow and flopped down, head first into it, bum in the air.

My picture of a wave means to me an ice cold wash of the pain away and the sun is hope in the future.

Angela
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Post  alli Tue Mar 09, 2010 10:41 am

It's frustrating when you don't look like you have a chronic illness. People just don't get it. Even those closest to you. I sometimes wish that I looked like I felt. That something would be obvious so that people would understand that I am not as healthy as I seem.

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Post  LG Tue Mar 09, 2010 11:29 am

I often notice that my daughter frequently looks so much better than I do. I am always the one who is a mess with stains all over me, greasy unkempt hair and bags under my eyes and she is the picture of perfection. She represents me well when I used to be healthy so I'd much rather a picture of her up than me.
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Post  estre004 Tue Mar 09, 2010 1:13 pm

dCook 60 - So people are fessing up. I have a digital I haven't bothered with yet either. My kids gave me a GPS and digital camera for Christmas. I have conquered the GPA (pretty simple) and am sure the camera is just as simple. It is JUST ONE MORE THING though. I owe people pictures though so I have to get with it.

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Post  sherri b Tue Mar 09, 2010 3:09 pm

Face your fears! Hey, if I can learn so could anybody! What's it gonna be like when we are in our 70's? technology, yikes drunken
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