Girl talk..everyone's invited, just doubt most men will be interested

Survivor, so they had the full hyst and still had cysts and endometriosis? That doesn't make sense to me. Did they have full/complete?

I totally thought my problems would be over when they took my left ovary out as it always seemed to be the trouble maker...I was wrong. lol...big time wrong.

There is some misunderstanding about the nomenclature in hysterectomies. A total hysterectomy is the uterus and cervix, I think. It has to be a radical hysterectomy to include the ovaries. I know the nomenclature for mine was "total abdominal hysterectomy with saplingectomy(sp?)". That means they took my fallopian tubes, too.

I don't know the organic nature of their pain and I suppose it could be adhesions. Obviously, I am not the correct person to talk to about that because I was very reluctant and still regretful about my own. People kept telling me how much better I would feel when I didn't have that huge tumor and wasn't anemic from the bleeding but it just didn't happen.

I admit I do know women that said it was the best thing that ever happened to them.

Maybe it is geography or maybe it is that most women I know have had children. My surprise was that people have difficulties getting a dr to agree. Sure isn't the case around here!

Survivor,

Oh, my gyno was full steam ahead to do the hysterectomy, but I couldn't get him to touch the ovaries which were what was causing the problems (I didn't know about the adneomyosis until after the hysterectomy and the biopsy). This man was really knife happy with uteruses, I think 1/2 the women in our small town had hysteros because of him.

But to take care of the main problem? Nah uh. And, part of me understands, going through menopause in your 20's is NOT a good thing. But, on the other hand, I had so much pain every month from the mettleschmertz and the accompanying cysts. And poor hubby...forget about sex. Sometimes when the cysts would rupture they'd hemorrhage. I don't even remember how many ultra sounds and laprascopes...sometimes the cysts would be the size of a walnut, sometimes the size of a softball.

Oh yes, when they burst it's lovely!

UGH. I'm drained at this point. The symptoms combined point to ovarian cancer, but I'm smart enough to know that this will likely not be the case.

GP tomorrow morning then the pain specialist for facet blocks and botox in the afternoon. Should be a lovely day.

On a positive note....the sun is out and it's warm and dry....and that is sooooo not our typical fall weather.

Milo,
I'm so sorry that you are going through all of this, I know how bad it sucks!
I had a total hysterectomy at 29..... both of my ovaries were full of dermoid cysts. Best decision I ever made.
As for your bottom pain, sounds like you might have a fissure.... your GP could rx some cream with a little nitro or nifetipine (sp?) in it... that draws more blood to the area to promote healing... and the previous suggestion about a sitz bath is excellent. Sounds like you have some IBS, mine was always worse when I was having gynie issues... my gastro always recommends that I talk extra fiber to help bulk things up.
Good luck with the DR visit and I hope you get in with the specialist promptly!
Beth

I guess I'll update this.

I started bleeding very heavy on Oct 25th. Like, very, very, end up in hospital heavy bleeding. The bleeding has calmed somewhat, but I've been bleeding non-stop since October 25th.

I finally saw the obgyn a week ago and she did a biopsy on the spot. Now I'm sitting here freaking out while I wait to find out if I have cancer. The lining of my uterus is three or four times thicker then it should be and the bleeding is out of control.

The day after the biopsy I had another severe bleed day, but now I'm back to just a heavy flow.

I've been reading up and most places say that surgical menopause increases migraine in 2 out of 3 women...so I'm freaking out. I cannot live with WORSE migraines.

Milo,

I'm sorry to hear. I'm wishing you the best of luck and for a speedy treatment and recovery.

Please take care.

-mgb

I am so sorry to hear that - and I sincerely hope it's not cancer.

As for the hysterectomy being the cause of the M increase - it's not a rule written in stone, so let's not decide now
it will happen for sure. It may not!
Either way, the other problem is way more pressing right now, there is no ifs and/or buts.
No point worrying about M for now -we'll do that later.

You are in my thoughts, Milo and I will be awaiting further updates asap.

Risa
ps - but just so you don't think I am dismissing your worries about M as I know how serious is fear of M - I am sure
in case of surgical menopause you take supplements and that will minimize its effects. Something can be done.
Also, who knows - maybe it's precisely the problem you have that is causing you M and curing it will make you better M wise? just a thought...

Milo,
I sent you an email because I am going through the same thing
kathy