Just when I thought it was safe...

I submitted my resume to a fabulous company over the weekend, and went to a job fair and submitted it in person to the same company. I have been wanting to work for the company for years.

Then my neurosurgeon's office started suggesting replacing my shunt.

I can't win. One day I'm excited, one day I'm in bed. One day I'm feeling strong, one day I'm sickly. One day I'm planning career wardrobes and one day I'm planning intracranial monitoring dates.

I'm just venting and whining. Mouring the life that I won't have. Dreading the appointments and procedures and surgeries. Sad.

Sometimes our health just pulls the rug out from under us. So sorry about your disappointment.

I am so sorry that you are suffering set back. How well I uderstand such dissapointemnts.
We are so ready and so optimistic to get our life's back - at times I wonder why. But I suppose thisis the sign that this condition does not kill our spirit, no matter what.

The feeling you describe is so familiar. I have been planning - in my head - my summer "wardrobe" for holiday in Poland, but it is doubtful if I will make it. I hope I might, but... I have one or two follow up doctor visits and some other complications in the way, which I could handle, but I have become more unsure about planning anything. Lasts year I bought an advamce ticket and did not go in the end. The ticket was wasted, no matter it was not much money.
I know holiday is not the same as a nice job, but I miss my country and my family very much.

I hope you will have a better time soon

Senna

I understand disappointment. To spare myself, I make no plans until the very last minute ... everything else is "maybe." My only "monkey on my back" disappointment is that I do not trust myself to visit my Mom across the country. If I had an episode at a layover, I would be hospitalized in a strange city. Scary to me ... and likely at this time. But yeah, I understand disappointment.

Hang in there. How delightful that you can still apply for work. A job is so very important ... just "getting out there" and being with people. I miss it dreadfully and cheer aloud when of folks like you still seeking work with this dreaded disease. Good for you! Keep on trucking!

Richard wrote:

Hang in there. How delightful that you can still apply for work. A job is so very important ... just "getting out there" and being with people. I miss it dreadfully and cheer aloud when of folks like you still seeking work with this dreaded disease. Good for you! Keep on trucking!

Although I do occasionally complain about what goes on at work, there isn't a day that goes by that I am not grateful I can work. I am truly fortunate that I can control my migraines well enough that I can do most of what I want and need to do. I feel so awful for those of you at Ronda's who do not have that luxury. In fact, I periodically get a bad case of "survivor's guilt". Blessings and good energy to all of you.

Chris

I so understand Lynelle and I am so so sorry.
In the past I had these plans too, and just when I was full of hopes for better future BANG!!! everything went into ruins with the worst M week ever.

But I hope since you were doing so well and after all you will be until the surgery day, chances are you'll be back on your feet
in no time once the surgeries are done.
I will keep my fingers tightly crossed for you Lynelle and for your speedy recovery so you can go on with your plans! go Lynelle!

Risa

As usual I can count on all of you to make me feel better.

Thanks. I needed that.

Lynelle, I am late in arriving........as usual here lately......

Just know, as you've already been told, we all certainly 'get it'. I'm sorry things have happened as they they have in regards to your ideal job and then health coming in and taking away the dream.

I hate it when the pain issues raise their heads and keep me from participating and enjoying my son's activities....or I go and do the activities......and pay for it later. I guess I rather 'do' and pay later.......I just wish it was all do-able without paying prices all the time.

Supporting You,

Mianna.

Hi Lynelle-
This sort of thing kept happening to me until I finally "gave up"... I would try my best to get stronger (both M's and my back problems) but every time I made a little progress, something would happen.
Head would get worse, I would suffer a fall, break my coccyx, that sort of thing.

It is a discouraging way to live --- you have my fullest sympathy. I hope you can keep on trying and eventually get a position with this company... keep us posted, dear-
Love,
Holly