Could son's neck pain be from doxycycline?

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Could son's neck pain be from doxycycline?

Post  ajr on Mon Jan 11, 2010 4:58 pm

My son was put on doxycycline (100 mg twice a day) as a possible treatment for his daily migraines by our neuro. His neuro had done studies on this type of treatment and had some positive results, but more in the new daily persistent headache area. However, we decided to try it - he has been taking this for about 1.5 months.

He does get an upset stomach from it but has learned to deal with it. However, recently he has had quite severe pain on one side of his neck - not a stabbing pain, but more like an achy feeling in the muscle. He has also continued to have many migraines - ones that never really leave but just flare to high pain then back down to lower pain, etc. His neck really bothers him and this has been going on for about a week now.

I am just wondering as I sit here, if perhaps the doxycycline antibiotic could be causing this muscle pain and strange headache pattern. I tried googling and of course I did find instances where people reacted horribly to doxycycline, etc. but that always happens when you google it seems.

I just wondered if anyone had any experience with this antibiotic or if they thought this could cause muscle pain like he has in his neck. I'm going to have him stop taking it - it's not helping anyway. Isn't it always something??????! Thanks for your thoughts!
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Re: Could son's neck pain be from doxycycline?

Post  Stillhurtin on Mon Jan 11, 2010 7:07 pm

I don't know if it could be the meds or not.... I do know 2 things:

1. I OFTEN but not ALWAYS (lovely unpredictable M) get neck pain with my bad Migraines....and
2. I get a reaction to Imitrex that is a burning muscular pain in my neck.

So basically I am no help and only validate both sides of your confusing situation.

Sorry. lol But Wanted to chime in just to let ya know I understand and hope he feels better soon!
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Re: Could son's neck pain be from doxycycline?

Post  Guest on Mon Jan 11, 2010 8:00 pm

hmmm, doxycycline. ajr, i have no idea why outside (off the top of my head) why a tetracycline would be prescribed for migraine. it works for things from anthrax to acne.

i don't really see how it could possibly help unless there was some subset caused by an infection that needed to be treated to alleve migrainous headaches. your son will have less acne.

my dermatologist when i was teen put me on it for acne, and it did have some ugly side effects including upset stomach (don't take it on an empty stomach) and headache.

i would really question why this treatment is being used....and this would be considered an off-label use.

not a doc, but this doesn't make a whole lot of sense to me. plus it is exposing your son to dosages of an anti-biotic which could make future use of anti-biotics less successful.

a bit of a head-scratcher to me, but i do think i did read about this somewheres along the line, i just don't remember.

good luck.

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Re: Could son's neck pain be from doxycycline?

Post  Anna's Mom on Mon Jan 11, 2010 8:11 pm

I've seen mentions of it on other migraine/headache forums:

http://headacheandmigrainenews.com/doxycycline-for-daily-headache/

They came up with it at MHNI.

It is used for ICP HA's also.

Cheryl
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Re: Could son's neck pain be from doxycycline?

Post  ajr on Tue Jan 12, 2010 5:26 am

Thanks for all your replies!

Cheryl and Marc - the doctor who used to be at MNHI is the doctor I am seeing - Dr. R. He has since moved to an area about 2 hours away from where I live. He has a theory that some headaches are caused by a systemic central nervous infection....something that may have occurrHe ed after an infection like tonsilitis or bad wisdom teeth that then spreads into the central nervous system. I don't think it has helped in our case unfortunately.

Jessica - now that you mention it, my son has had his jaws ache after using imitrex in the past - that achy kind of muscular problem in that area. He hardly ever takes a triptan now because they don't help him much, but a while ago he took a Relpax because we were at the end of our rope and I wanted to see if it would work. It didn't do much for him (the work great for me) but I'm hoping I didn't get his neck problem started with that one time use of Relpax. Gosh, it seems like that would go away by now, doesn't it - if it were from the Relpax?

I did see many horror stories of people using doxycycline, but I'm sure they aren't the norm, but then again, I guess my son isn't the norm either. Ugh. I just hate this. I wish I knew what it was!

Thanks again for all your help, Jessica, Cheryl and Marc. I appreciate it.
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Re: Could son's neck pain be from doxycycline?

Post  30yrsofheadache on Tue Jan 12, 2010 9:17 am

I hope I am not repeating myself. I wrote 2 other replies, but I have a migraine today and I dont know what happened! I wondered if the Dr. had mentioned the possibility of Lyme disease to you. Doxy is the antibiotic of choice for treating Lyme. When a person with Lyme starts antibiotics, there is almost always a herx reaction. This is caused by the toxins produced by the die off of bacteria. It makes you feel worse than the original infection.

This is actually a good sign that treatment is working. I am concerned that you are stopping the antibiotics if there is any chance of Lyme. It is really important to get at least a month of Doxy. I belive that the reson Doxy is working for so many other conditions is that Lyme can cause so many symptoms that act like other things. Good site for reading about Lyme: www.Lymenet.org. Sorry if this is not clear, I need a nap..
Hugs,
Cindy
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Re: Could son's neck pain be from doxycycline?

Post  ajr on Tue Jan 12, 2010 12:13 pm

Thanks Cindy. I actually thought about Lyme - we've mentioned it before many times and the doctors look at me like I'm crazy, etc. He has been on the doxy for over a month, so I would have thought I'd see some improvement by now, but maybe not (??)

As far as I know - he's never had a tick bite, but who knows really. I almost wish it were something like that though so we could pinpoint a cause for this nightmare.

I see what you're saying about the die off of bacteria though - I thought about that too. Hmmmm - what to do what to do. I just made an appt with his GP for next Monday so if it's not better by then, I'm hoping he'll do some testing, but you know how that goes. Would the herx reaction last for a while do you think? I'm so confused about what to do. Thanks for your help/advice.
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Re: Could son's neck pain be from doxycycline?

Post  ajr on Tue Jan 12, 2010 12:19 pm

I just read about the Herx reaction...saw it can last for a long time in some cases. Hmmmm....maybe we will keep taking the antibiotic after all. I hate all this unknown stuff!!! I feel so helpless. Thanks for the info and idea Cindy. I appreciate it.
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Re: Could son's neck pain be from doxycycline?

Post  30yrsofheadache on Tue Jan 12, 2010 4:28 pm

Be prepared for the GP to be unsure about Lyme. Be very firm about testing with a Western Blot. Dr.s' are scared to go down the Lyme path because it is controversial. The best Dr.'s treat according to symptoms since testing is not very reliable. I hope things work out for your son. Yo can ask me questions anytime. Well, maybe not too hard of questions as I am in pain and loopy!
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Re: Could son's neck pain be from doxycycline?

Post  CluelessKitty on Tue Jan 12, 2010 7:31 pm


As far as I know - he's never had a tick bite, but who knows really.

You don't have to be bitten by a tick - you can be bitten by its larva or nymph as it is correctly called, and you would never know it. And neither you have to have a characteristic redness, yet still have Lyme.

Of course the doctors will look at you like you grew the fifth appendage whenever you mention Lyme's.
They are as educated on this as they are on M.

But you know what it wouldn't hurt to be tested for Lyme, keep in mind though it is extremely difficult to test for Lyme and perhaps you remember Casey's post, there also is Babesiosis that is a possibility.

I don't know, I think getting tested is well worth a shot- but I would look for only a Lyme specialist.

Risa
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Re: Could son's neck pain be from doxycycline?

Post  Anna's Mom on Tue Jan 12, 2010 7:43 pm

Dr. Rosen usually gets pretty high praise on migraine forums that I read. It would be a blessing to be able to see him. I heard he is doing infusions in his new practice. Has your son been able to try anything like that with him?

Cheryl
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Re: Could son's neck pain be from doxycycline?

Post  ajr on Wed Jan 13, 2010 5:15 am

We did indeed do the three day infusion, and it did nothing - it wasn't anything terribly strong - less strong than what he had at Diamond. And, we didn't realize that our insurance didn't cover it like they would an "outpatient" procedure (like when we were at Diamond and we didn't have to pay much of it) so now we are left with a very large bill to pay- and it is not going to be easy for us. So, I am not really happy about that. I wish we had been warned about the cost of it before we did it.
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Re: Could son's neck pain be from doxycycline?

Post  Anna's Mom on Wed Jan 13, 2010 9:03 am

That is very crummy!

Cheryl
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