New to the Boards

Hello, my name is Molly, and I was just recently diagnosed with complicated migraines. I discovered this after going to the ER a couple times with stroke like symptoms and they did a CT scan and MRI and everything came back "normal." I went to the neurologists and he diagnosed me with anxiety disorder and complicated (or complex) migraines.
I still get freaked out when I get them, but I'm getting used to them now. I get numbness in my right temple down to my cheek. I also get numbness, sometimes in my legs and arms. My arms and legs aren't weak, but they get numb.
I also suffer from GERD, visually impaired and overweight, but I'm eating healthier so I'm slowly losing weight.
My neurologist suggested that I find a support group with people who suffer from migraines and I found this group and thought I'd give it a try. I'm also looking for one locally. I live in Buffalo, NY.
From what I've seen from this place, it looks like there are a lot of nice people.

Welcome Molly!

Well you are in good company however your variety of M seems to be a bit scarier. I am just a chronic daily migraine sufferer - no specific diagnosis, just plain old yucky M. Am in "guinea pig" trials to try to get them to stop...always interesting and I'm hoping a medication will work.

I will say that this is a fantastic support group. While we don't all share the same symptoms and reactions to medications we do understand what other go through. This disease is rather isolating and we seem to be a unique bunch (the standard treatments aren't always effective with us). If you have questions, ask away and we do get some weird symptoms. It also is a place to vent with things that are frustrating and in the Miscellaneous forum...well we have all sorts of conversations.

Welcome...glad you are here.

Becky

Welcome Molly,

Glad you found us, and yes, there are some very friendly helpful people on here.
I can't say I share your symptoms particullary, but be surprising if someone on here doesnt.
We seem to cover most things one way or another.

Feel free to ask questions, sound off, or join in duscussions.
You can learn a lot, and also share.
We also have a helpful neuro and others that come by, so I am sure you will find it helpful and supportive.

Excuse me being a bit brief, but here in England it is almost 2am.
I need to try to sleep.
Hope to see more of you on here.

Cheers.
Pen

Hello Molly, nice name i like it. What did the neuro say at your visit. If you wanted advice about that kind of things, all of us

have had good visits and bad visits. and there are alot of meds to try and help prevent M . But if you just want us to know how

bad you feel we know that also. Hope you get better soon.

Hi Molly,

This is a great group of people. I'm so glad I found them.

NOt going to write much, I'm not having a good day, but I wanted to say Hey, and welcome.

Charlotte

Thanks everyone.

I am just wondering about something. I suffer from anxiety disorder and wondering if the migraines can be part of it. I notice I get really bad ones when I am anxious, and having them causes me to get even more anxious.

Welcome to the migrainepage Molly, hope you feel at home here. Like everyone else, I don't have experience with your brand of migraine..I am a chronic migraine sufferer and just trying to live with it but I have some funky auras sometimes and have TONS of questions about them and have always gotten answers and great responses about them.

Hope all is well and we see you around the posts!

Molly,
Still trying to push this one away. But I too have anxiety, and I have yet to work out which is cause and which effect.
CBT made it more confusing....frankly so few people understand migraines outside of the specialists, me included I think.
Certainly they are co morbid for some people. But intrinsic or not, still not sure. My anxiety with migraine comes from agonising over medication. When, how much. Am I in rebound.....that's what does it for me. But I do have other anxieties. Embarrassing, but there it is.
I also have Fibro and that seems to cause most sufferers a lot of anxiety too. I'm sorry you have to bear this.
Hope this helps a bit.

Pen

Welcome Molly!
You doctor is a smart guy. He gave you a good hint. A support group helps a lot and makes things more "normal" despite migraine is everything but "normal"

I hope that you stay with us, share your experience and your suggestions.

Bye

Hi Molly and welcome

I'm sorry you're having such a bad time with the migraines but glad you've found this forum. I'm sure you'll get lots of support.

Liz

Molly,

The anxiety...I'm not normally an overly anxious person. However, during really bad M or the start to one, I get anxious and very restless. I think the pain and the other effects do things that cause it - at least partially. I know that when your body is going through things that are definitely not normal, anxiety is a side effect. I know if I know what's going to happen, anxiety goes away, but with M - nice wish...I never know what's coming next. I do feel for someone who goes through that more often...it's hard and mentally, not fun.

Hang in there,

Becky

Welcome to the board. Anxiety can be part and parcel of this diesease. Not surprisingly as they cause so much pain. Sometimes anxiety attacks are a precursor (or prodome) and sometimes it is just anxiety over whether you are going to get one or not. Preventative medication can usual halp with reducing the number of attacks which can reduce your anxiety.

Alli

you have found a great place to be. i had no pc for 1 1/2 yrs and missed this group. been sick a long time and still learn something every time i log on.l i even forgot about prodromes i knew what was happening but not the tech. term. everyone here will be able to "help" you in some way. do not be a stranger. i shudder to think about all the help and friendships i had been missing out on. welcome. and yes welcome spring!
rose

Molly - I also have been diagnosed with complex or complicated migraines and numbness is one of my symptoms. My numbness is usually on the left side of my face and sometimes travels down my throat - I know how unsettling that can be! I hope that the more you learn about migraine aura the less anxiety they will create. I know for me understanding what is going on with my body helps me make it easier to make it through my migraine episodes. Do you have any other aura symptoms? Any pain? 30 years ago when my migraines started I also had a lot of anxiety - mostly from not knowing what was going on and the docs telling me it was "all in my head" - certainly anxiety can be a trigger. Have you noticed any other triggers for your episodes? Please stay in touch - this forum is a wonderful place to educate yourself and get support! Leslie