I was just wondering about life quality.

IKEA is really on my no go list. It almost always guarantees an attack. The two nearest London are too much for me and are somehow much more demanding than even the one at Bristol or near Birmingham. The only one I can cope with is in Coventry but it is a new store and is set up a bit differently with sound and people flow thought out better. The lighting is different too. I think IKEA is more challenging than a lot of other trips out, they seem to have so many triggers for me.

hope you get a break from the migraine soon.

Di

I have had a better today from oversleeping this morning.....I went to the store, didn't drive, battery flat, so went with husband.
~Then called my friend in Gateshead. After lunch went to gets eggs from farm.

Now 5pm and I feel very wobbly and pain is worse.
I seem to get a low between 4 and 7pm.
I have tried the blood sugar thing and I cant figure it, but I often get worse between those 3 hours.
Sometimes I improve later, other times no.
So I didnt get to bed until 2am and slept until 11 this morning (bad).
But no medication so far today.....

Ikea, our new one in MK is great. We used to haver to go to Brent Cross and it is a nightmare.
This one is so relaxing by comparison, but I do have a problem with travelling.
Even today, a 20 minute journey, within 10 minutes I could feel the pain up the side of m head.
Thankfully this time it didnt get too bad. Not sure what to do except try my soft collar in the car.

I hope you have had a reasonable day.
Thanks
Pen

hi,

just wanted you to know, I'm there with you, the only reason i make it to work is because I am only part time now, i only work 2 days a week, and guess what? sometimes I don't even make it 2 days, how embarrasing is that? I'm thankful right now I am on partial unemployment. I'm thanking
God really.

I saw on another answer here, that they don't plan anything socially, I don't either, and my husband has come to learn that we can't do it. I feel bad for him, he is a very social person, and he hangs out with me most of the time unless I am so bad, he knows he can't make any noises.. and leaves.

Hi Sherri,

I plan all the time, in my head. I have a list of things to get around to.
Even a grocery shop can take till next week, but I put it on the back burner and do it when I can.

Other things dont happen.
I have been trying two years to go see my friend who has Parkinsons.
I used to go up every september.
Last 2 years my head has gotten so bad, I cant do the journey.

Socially I just dont bother any more, I cant stand the embarassment and guilt trips.
It isnt life; it sucks, but what choice do we have?

Hope you make it to work next time.
P

Pen, I have to say your are worse than me. I have some days when I can get stuff done or take a little trip. I think what happens to me is when I do have a good day, I dive in to hard and try to catch up, putting expectations on myself that are to overwhelming.

I will keep you in my prayers. That is all I feel I have to hang on to these days, and I don't understand the suffering God allows. I keep asking Him though.

I am also investigating the facelift surgery that a dr. from Cleveland Oh is doing. It is helping migrainers. Waiting for a call back from them to schedule and appt. I received a packet from them, and have to keep a 4 week log about my migraines, I will try to keep you posted about it. Do you have insurance?

My daughter is 13 (almost 14) and has zero life quality. The extent of her social activity is going to the psychologist or other doctors and when her tutors come to the house. She just had a 2 week period where she did not leave the house at all. It really stinks. Last night I told her to text a couple of friends and I would go pick them up, but none were allowed. Playing her giutar and singing on her better days is the best that she can do for herself. I couldn't even bribe her to get out of the house with a trip to guitar center to play her $2300 dream guitar.

just been reading these posts - im sorry for your continuous headache pen.

have you considered that it may be medication overuse headache.
I was new to the headache world until last summer i started getting them and probably took more paracetamol than i needed to and ended up having headaches/migraines evryday for like 4 months!

eventually they went away. the docs did not know why i got them but i think it was the paracetamol. have a look into that . it may help.

apparently CBT (cognitive behavioural therapy) can help with chronic headaches too i was starting to look into that before it got better.

all the best

Thank you for your comments. I have considered MOH, I fear it all the time.
According to the neuro it is worse than aspirin.
BUT the only thing that seems to work at all is Anadin extra, and I do take more than I should.
Although he told me to not take more than 32 a month. I have had 36 this month, (sinus) but usually manage to stick near the 30 (or less). How many were you taking please, we all seem to be so different.

I have been having CBT but they have dumped me because I missed 2 appointments due to migraine....
I had managed to go to 6, but it turns out they were all just assessments so I never actually got any help.
This make me so cross, I know it is difficult for them with apts, but it always seems to be the most badly effected people get the least help because of the severity of their condition. I even had this from COLMC
I referred myself for CBT because I had heard it can help. Guess I'll never know.

Thanks a lot.
Pen