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Still working....

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Post  hpilgrim Mon Sep 20, 2010 10:36 pm

I haven't been courteous enough to report to you guys , but the doubling of the Verapamil to 240 mg. a day is still working.

Since I am 59, I have thought that maybe the age thing that I thought was a myth might be kicking it too...

But my neuro is still surprised that the V. worked so quickly with me... his words were "I've never had it work like a bullet before..."

I am just grateful for the almost nine months of monster relief. I get 'small' flares that I can handle with aspirin. That tells you how much better it is - I was taking 10 mgs Maxalt every day for months the day before I saw that dr.

So I just want to tell you all I love you and am still praying for you - and that their IS hope...
Holly

ps. I am going to try to hang around a little more... I still have trouble sitting at the computer, but I miss you guys...!
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Post  tecky Tue Sep 21, 2010 7:03 am

I'm so happy for you, Holly!!! It's so good to hear a success story. I hope it continues and life just continues to get better and better. Please take care. flower
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Post  Anna's Mom Tue Sep 21, 2010 9:12 am

I am delighted to hear it, Holly! What a success story.

Cheryl
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Post  pen Tue Sep 21, 2010 9:45 am

Fantastic news Holly. I am getting nowhere fast, and am a year older, so age thing hindering not helping.
I am pleased for you and hope the rest of us can have some luck soon.
You have given us hope.

sunny

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Post  estre004 Tue Sep 21, 2010 11:58 am

Holly - are there any side effects with the Verpamil?

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Post  rileyoday Tue Sep 21, 2010 2:31 pm

I just posted the same thing for someone. Maybe thier help is in the next prescription. Im happy for you as we seldom see relief here.


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Post  lentils Tue Sep 21, 2010 3:27 pm

I just read wikipedia's description of this drug. It's a vasodilator. Triptans constrict the blood vessels. Why do they both work? Is it because verapamil is being used a preventative?
Anyway, it's great that you found something that works and I'm glad you shared that good news with us.

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Post  estre004 Wed Sep 22, 2010 7:30 am

Holly - I am also 59 (for another month anyway). Wouldn't that be something if it was the age thing and not the verapamil after all? Keeping my fingers crossed.

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Post  hpilgrim Wed Sep 22, 2010 9:02 am

I can't figure out why it worked. This is the first neuro I have been to that actually LOOKED at me when I talked, and listened. Apparently 240 is a fairly high dose, twice what I had been taking . He said some people can SEEM to be having the blood pressure in control, according to the numbers, but for that individual, for some reason they need a lot more control....

All I know is , for NOW, I am getting a little relief- it may be over tomorrow. It's something to try. They problem is your dr. may say "oh your numbers are fine" and he may be hard to convince to try it.

These days it's my back that is so bad, getting to when I need a cane or walking stick much of the time. The back doctor is not one that will listen -- he says "you just have to live with it" .... yeah, easy for him to say, huh?

God bless all, love and prayers,
Holly
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Post  estre004 Wed Sep 22, 2010 9:09 am

Holly- I would never accept "just have to learn to live with it" crap. Maybe UNTIL you find relief because you have no choice.

I know what you mean about the blood pressure stuff. I'm bringing it up to my neuro though. I have an appointment on Friday.

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Post  Greeneyes Wed Sep 22, 2010 9:47 am

Yea, Holly..awesome news to read. Very Happy

Blessings I love you greeneyes
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Post  hpilgrim Wed Sep 22, 2010 10:41 am

Dear Estree I hope he listens to you... it's an out of the box idea.. If you can, DEMAND to try it... :-)

Thank you dear, Wendy... I am still hoping and praying for you....
Holly
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Post  30yrsofheadache Thu Sep 23, 2010 5:14 am

Holly, That is the best news! Very Happy I hope it continues for a long time. Now that I think of it, I have a friend who did really well with Verapamil. I am on a pretty high dose of Inderal. I may try switching and see what happens.
Hugs,
Cindy
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Post  Ivy Thu Sep 23, 2010 6:07 am

Hi Holly,
I'm so happy to hear success stories! I wish I could find a good preventative too.
My daddy takes Verapamil for high BP, I should stole him some pills Smile
Just kidding...I can't try beta blockers as my BP tends to be too low.
Take care
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Post  Brenda Thu Sep 23, 2010 7:49 am

I'm completely thrilled for you Holly! I hope this treatment plan keeps working so well for you. It gives me hope that maybe someday they'll find something to help me too. Exciting news!
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