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The ones that come in the night

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Post  pen Tue May 04, 2010 5:59 am

I know this is a big problem and has been discussed before.
I am off to the GP this afternoon with a letter from the neuro suggesting NSAID treatment to try to break the cycle.

Just wondered it anyone has tried this, did it work?
And/or have you found "anything" to stop them coming in the night?

It is depressing going to bed in say 3/4 pain and waking in 8/9.
Something does it, but I am clueless.

Thanks all.
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Post  estre004 Tue May 04, 2010 6:54 am

I thought Nsaids were a cause of rebound (for some people).

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Post  pen Tue May 04, 2010 7:05 am

estre004 wrote:I thought Nsaids were a cause of rebound (for some people).

They are Linda, but they have come up with this "short" course of them (month or so) twice a day to break the cycle....
Not if you are already on them. I dont take Naproxen or Diclofenac so they would be the drug of choice....
I am confused though.

P

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Post  estre004 Tue May 04, 2010 7:21 am

Anything is worth a try. A co-worker of mine is on an anti-inflammatory daily instead of just when she gets the migraine. I'll have a talk with her and see how that is going.

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Post  pen Tue May 04, 2010 7:23 am

Yes, I guess its the same principle. First mentioned to me last year by one of our top neuros here.
He seems to find it helps, but it is confusing with the MOH issue....

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Post  estre004 Tue May 04, 2010 7:28 am

Makes no sense to me with the MOH issue. Makes me wonder if there really is MOH and if there is, why would they suggest you take them everyday? Very confusing.

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Post  pen Tue May 04, 2010 7:43 am

I am never sure, but it does seem a controversial topic.
Let you know what the GP says.
She has the neuros letter.

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Post  estre004 Tue May 04, 2010 7:47 am

Good luck. While you are there, bring up Migranol (DHE) again. I think you said you didn't have it in England. If it wasn't for that, I would be in the same boat as you.

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Post  pen Tue May 04, 2010 9:10 am

Sorry Linda,got the message to late. But I do know they arent keen on it here.
I will see her again within the month and will make a not to ask her though.

She has referred me to a pain clinic. Authorised some physio for my neck, approved the 18 Triptans a month and given me Naproxen to try 250mg twice a day.

As for MOH ,we discussed this and she compared me with those of her patients for whom she sees a potential problem.
She feels I am not taking nearly enough nor displaying the obvious usage habits, so I will be guided by that and remain open minded. Her main premise is "Are they giving you some relief?".

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Post  estre004 Tue May 04, 2010 9:25 am

For whatever reason they are not keen on DHE, all I know is that it stops the pain. Anything that can do that, is worth it to me. My doctor is not concerned about it at all. I've been using it for years now.
Works a lot better than the triptans. I hope your new plan works. At least you got more triptans.

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Post  alli Tue May 04, 2010 9:44 am

I use Naproxen as an abortive and pain reliever. I also used it when I was breaking a rebound from Excedrin back when I was taking it several times a day, every day. My doctor was of the opinion that MOH isn't as big an issue with Naproxen which was why he recommended it for breaking the MOH. He got migraines himself so I trusted him more than others.

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Post  Kate Tue May 04, 2010 9:54 am

Taking a lot of nsaids just made it worse for me and never touched the m. I`ve had a Dr suggest that I take them to break the cycle too.

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Post  theresae Tue May 04, 2010 10:12 am

Pen it sounds as if you have had some positive feed back from neuro hope it all goes well for you, keep us updated.x
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Post  pen Tue May 04, 2010 1:23 pm

Kate, sorry it didnt work for you, it may not for me either.
It is just the depressing going to bed feeling much less pain and waking in really bad pain that wont shift until maybe 3pm.
I need to try something.



Theresa, the neuro has basically done what I suggested, he was out of ideas, but at least he was compliant and nice about it.
My GP is happy to go along with his suggestions and she had already suggested more physio so it all worked out quite well.



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Post  crt Tue May 04, 2010 3:58 pm

Pen,

Before I discovered what helps me overall with migraines, I was focused on eliminating or at least reducing the ones that come in the night. For me the causes seemed to be

1. my head and neck being cold which then made me tighten up the muscles and trigger a migraine
2. sleep apnea = reduced oxygen > migraine

1. I cover my head and neck with a hooded sweatshirt and a scart wrapped around my head
2. Use the CPAP machine and/or nose strips

I very rarely wake up with a migraine any more. I used to get them quite frequently.

Chris
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Post  dcook60 Tue May 04, 2010 4:02 pm

oh chris, you are so very fortunate that CPAP is tolerable for you. i tried multiple kinds, and i couldn't stand the tightness or the noise.

have always been a light sleeper, maybe because of raising 5 kids and being vigilant for kid noises in the night. thanks for the tips, dianne
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Post  pen Tue May 04, 2010 4:36 pm

crt wrote:Pen,Before I discovered what helps me overall with migraines, I was focused on eliminating or at least reducing the ones that come in the night. For me the causes seemed to be
1. my head and neck being cold which then made me tighten up the muscles and trigger a migraine
2. sleep apnea = reduced oxygen > migraine
1. I cover my head and neck with a hooded sweatshirt and a scart wrapped around my head
2. Use the CPAP machine and/or nose strips
I very rarely wake up with a migraine any more. I used to get them quite frequently.
Chris

Thanks Chris. I do think my neck is a factor here. It hurts in the car on bumpy roads and can trigger head pain.
I dont know about sleep apnea. In UK, not likely to find out.
What is a CPAP machine please?

I have tried wearing a hat in bed, but just woke up very hot with a migraine.
Havent tried a hoodie though.

Sometimes I wake and the pain isnt there, I get up to pee and go back to bed and it kicks in. That I figure is my neck....

Glad you got them sorted ,they are 90% of my migraines and are depressing me. I don't wan to go to sleep.
Its bed time now and my head is reasonable, but in the morning, it will be a different story.

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Post  dcook60 Tue May 04, 2010 5:00 pm

this stands for "continuous positive airway pressure". one must wear a mask that seals all around and thus has to be tight.

the machine forces air down your throat all night. the people who can use them say they are lifesavers; they feel much better in the morning.

personally, i call them "crap" machines. dianne
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Post  pen Tue May 04, 2010 5:17 pm

personally, i call them "crap" machines. dianne

Funny you should say that Dianne. That's what I wrote and then corrected it.

They sound unpleasant. I haven' heard of them here, but will check it out.
Not sure how it would sit with my claustrophobia...
pale

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