Querry re: Chiari

I've read quite a a bit online about Chiari. Do many people here have Chiari? Also, is it the complete cause of headaches/migarine? Or just a contributing factor? I have wondered if I have this. I have never asked to be tested though.

My daughter has it. Here is a good site for info:

http://www.conquerchiari.org

It is hard to know if all HA pain is from Chiari. The only way you would know would be to have Chiari decompression surgery, and if your HA pain goes away, then it was Chiari causing the pain. For some very fortunate people, that happens. Most people do improve somewhat after Chiari surgery (per Chiari patient polls).

Chiarians from Canada often have a tough go of it (per Chiari patient forums) because of a lack of specialists who treat Chiari.

Cheryl

Thanks for responding. How old was your daughter when she had the surgery? Did she have other syptoms as well as headaches? Did she have a variety of headache types? Hope I'm not asking too much. Gail

No problem. She was diagnosed and had surgery at age 23. I remember counting up 23 symptoms at the time.

Her HA pain was varied, even back then. Constant pain, but it moved around. She also had high intracranial pressure, but we didn't know about it until the year following her decompression surgery.

Did you see the video links by some of the leading Chiari docs/researchers that I shared earlier this week?

Have you been to this site?

http://www.thechiariinstitute.com

They have their own videos about Chiari on their website.

Cheryl

would you mind letting me know some of the 23 symptoms? i hope she is well now???

No, not well at all after eight surgeries/procedures for Chiari/PTC. Like so very many other children and young adults I know who have the same combination. It gets very complex, having both conditions.

Here is a good listing of Chiari symptoms:

http://www.chiarione.org/symptoms.html

Have you had a brain MRI?

Cheryl