sorry havn't been around lately

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sorry havn't been around lately

Post  dizzyflower on Wed Feb 08, 2012 4:54 am

I've been really down lately as I am waiting to be prescribed a different med after campaigning against the old one since last summer.

Now I am waiting in a backlog of work for the neuro's secretary so I don't know when hope starts again. So the migraines are every day and having a great time of it unchecked by meds.

I'm dragging myself into my voluntary work by public transport and pretending to be cheerful and as oK as possible which wipes me out for the rest of the week.

I used to think that I mattered but lately I'm not so sure.

Di

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Re: sorry havn't been around lately

Post  Mini on Wed Feb 08, 2012 3:03 pm

Of course you matter, Di! Don't ever doubt it.
Anyone who will take trouble to drag themselves in much pain by bus to do unpaid work for others, matters grately.

Yes, we all know this; pretending that everything is OK, that we are fine, whilst barely able to speak or to move because of the pain.

I hope that the new medicine will bring you some relief.
Also did you know that a short course of prendisolone (steroid) can break a cycle of persistent migraine if nothing else helps? You can ask you neurologist about it, in case the new medicine does not give you much relief.
When do you soo him?
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Thanks Mini

Post  dizzyflower on Thu Feb 09, 2012 3:42 am

I go to the neurologist when the letter arrives inviting me to call to confirm an appointment. The letter probably won't be typed till the end of the month so your guess is as good as mine about how soon my urgent appointment will be. But that's the NHS although at least it exists and can be good when you eventually get there. We used to pay for Benenden health insurance but ironicly when I got sick couldn't carry on with it because it was linked to work.

Unfortunately today I should be at school but my knees started to go wobbly half way to the train. I had the lights whilst getting up but tried to ignore them and that I was bumping into stuff. I spent half the night awake feeling dizzy so I should have known.

Di

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Re: sorry havn't been around lately

Post  Cindy*W on Mon Feb 27, 2012 1:20 pm

Mini is right Di, you absolutely do matter!

And to be getting out there and helping others when you don't feel well yourself is truly admirable.

I know I have had to take long breaks from here due to the fact that I just couldn't sit on the computer and type, and I felt a little guilty about it.

Guess I shouldn't and we all understand this situation I think.

I hope your letter comes really soon and this doctor can help you.

Please know we are here for you and will support you in any way we can.

Keep us updated on how things go.

Cindy
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sending you hugs

Post  chelle8178 on Thu Mar 01, 2012 10:58 am

Di--

You absolutely matter! I understand your frustration with doctors and medical red tape. I am on my 4th neuro in less than four years. I know how tough this is; I have migraines every single day, just like you and sometimes I get really depressed and feel like I don't count, helpless, even hopeless. But, girl, you gotta pull yourself up and keep on moving. Hugs to you and hoping you have more pain-free days and find the right doc and right meds for you.

Michelle
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