Sorry to be boring about this...MAW
+2
TeriRobert
pen
6 posters
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Sorry to be boring about this...MAW
But it is now Migraine Awareness Week in the UK.
It is a virtual attendance on FB, no travel or even getting out of your pit required.
AND, support is dismal. Loads of people I know do have migraine are not showing support.
Given the amount of people on FB, and the encouragement from people like Teri.
It is pathetic. And this event is watched and noted. Posters are up in surgeries, libraries, and places of work.
We need awareness and this event might be over here, but it is for the good of us all.
We need to make the medics and the public realise what Chronic Migraine really is.
So please, go to the link and click to attend if you haven't already.
And post in on your page, unless you are one that cant reveal your migraines because of circumstances.
You can still support though. Everyone knows someone with migraine...
https://www.facebook.com/#!/event.php?eid=133133313374982&ref=mf
You also might like to take a look at the new Migraine Trust web site.
http://www.migrainetrust.org/
If we dont support each other, then we cant blame others for not bothering.
Please click to attend.
Thanks everyone,
Pen
It is a virtual attendance on FB, no travel or even getting out of your pit required.
AND, support is dismal. Loads of people I know do have migraine are not showing support.
Given the amount of people on FB, and the encouragement from people like Teri.
It is pathetic. And this event is watched and noted. Posters are up in surgeries, libraries, and places of work.
We need awareness and this event might be over here, but it is for the good of us all.
We need to make the medics and the public realise what Chronic Migraine really is.
So please, go to the link and click to attend if you haven't already.
And post in on your page, unless you are one that cant reveal your migraines because of circumstances.
You can still support though. Everyone knows someone with migraine...
https://www.facebook.com/#!/event.php?eid=133133313374982&ref=mf
You also might like to take a look at the new Migraine Trust web site.
http://www.migrainetrust.org/
If we dont support each other, then we cant blame others for not bothering.
Please click to attend.
Thanks everyone,
Pen
pen- Posts : 2711
Join date : 2009-12-04
Location : London. UK
Re: Sorry to be boring about this...MAW
Pen,
I'm sorry people aren't being more supportive of this important observance.
I'll see if I can do a bit more blogging and try to get it into the newsletters I'm working on today.
Teri
I'm sorry people aren't being more supportive of this important observance.
I'll see if I can do a bit more blogging and try to get it into the newsletters I'm working on today.
Teri
Re: Sorry to be boring about this...MAW
I've facebooked, I've tweeted and shall continue all week.
LHx
LHx
lizholmesod- Posts : 61
Join date : 2009-12-16
Age : 44
Location : London, UK
Re: Sorry to be boring about this...MAW
Thanks Teri. It is very disappointing.
I have "famous" people supporting Ha!!
But some of my own friends and family are not.
How can we gripe about lack of support and attention?
It does seem not many people really care much at all.
I think I am going to make myself un popular, but I dont care.
This sounds like something and nothing, but it isnt.
Otherwise our two big associations wouldnt bother doing it.
Thanks again for trying to help Teri...
Liz, I know, and thanks....on behalf of us all!!!
I have "famous" people supporting Ha!!
But some of my own friends and family are not.
How can we gripe about lack of support and attention?
It does seem not many people really care much at all.
I think I am going to make myself un popular, but I dont care.
This sounds like something and nothing, but it isnt.
Otherwise our two big associations wouldnt bother doing it.
Thanks again for trying to help Teri...
Liz, I know, and thanks....on behalf of us all!!!
pen- Posts : 2711
Join date : 2009-12-04
Location : London. UK
Re: Sorry to be boring about this...MAW
'Salright. Gotta try Dawn, gotta be done.
2 of the non attenders from this forum.
11 of the no replies.
4 of the maybes
But I mention that only because, I do believe the initial misunderstanding put people off, and they wouldn't know to go back.
Unless they visit our pages, they wont know it was wrongly posted. And they wont go back and "attend".
So I thought it needed mentioning here as well.
It's a hard task for you and me and a few others though Dawn.
BIG disappointment on FB....
How many of your friends have signed up??
Mine have failed to impress although many have gone for it.
P
2 of the non attenders from this forum.
11 of the no replies.
4 of the maybes
But I mention that only because, I do believe the initial misunderstanding put people off, and they wouldn't know to go back.
Unless they visit our pages, they wont know it was wrongly posted. And they wont go back and "attend".
So I thought it needed mentioning here as well.
It's a hard task for you and me and a few others though Dawn.
BIG disappointment on FB....
How many of your friends have signed up??
Mine have failed to impress although many have gone for it.
P
pen- Posts : 2711
Join date : 2009-12-04
Location : London. UK
Re: Sorry to be boring about this...MAW
pen wrote:It's a hard task for you and me and a few others though Dawn.
BIG disappointment on FB....
How many of your friends have signed up??
Mine have failed to impress although many have gone for it.
P
I was a little disappointed that more of my friends didn't support it too, Pen. So many people who KNOW how this has turned my life upside down. Not sure what would get more people to acknowledge it.
Don't be discouraged, Pen. You did a wonderful job of promoting it. Simply wonderful....despite not feeling well so often.
Take care.
tecky- Posts : 825
Join date : 2009-12-03
Age : 62
Location : Montana, USA
Re: Sorry to be boring about this...MAW
I RSVPd and I am posting on my facebook page for my friends to see and join.
Tngirl83- Posts : 80
Join date : 2010-04-18
Age : 40
Location : Tennessee
migs
i agree pen, as may of my friens havent "attended" either, even after sending personal messages afetr it didnt post on the wall. am at a loss! do think tho as you say that people thinks it is a proper meeting to go to or something ??!!
dawn.binks- Posts : 405
Join date : 2010-05-27
Re: Sorry to be boring about this...MAW
Thanks again to those who are joining in. What a hard slog it is, and I am having wall to wall right now so close to my heart.
People never cease to disappoint. Pity we cant get animals to attend, I am sure they would show more loyalty.
So disappointed at Face Book friends...
People never cease to disappoint. Pity we cant get animals to attend, I am sure they would show more loyalty.
So disappointed at Face Book friends...
pen- Posts : 2711
Join date : 2009-12-04
Location : London. UK
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