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Slow release pain medication not interfering with triptans...

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Post  CluelessKitty Tue Aug 10, 2010 10:54 pm

Is there such medication that is not oxycontin, vico- or hydro- something
that is a slow/extended release, can be taken with both Percocet and any triptan and has strength at least
of 10- T3
(or 500mg/acetaminophen with 30mg/codeine) for a day?

I think I have either some kind of rheumatism - rheumatoid arthritis maybe,
or more probably- a fibromyalgia as the pains and their location I have fit its description to a tee.

The Percs I take for my M help very little with this other kind of pain and anyway, I pop them like a candy now to just be able get out of bed.

My friend who got his back "shot" in the car accident let me try his Tridural 300mg, a slow release Tramadol,
and I saw a huge difference while on this med after a two days only.

Unfortunately the pharmacy told me this med poses a medium risk of serotonin syndrom while taken with triptans,
so my Fam-Dr canceled my Rx for this.
Is it indeed that dangerous to be taken with triptans? I do take a lot of Maxalt , appr. 40-50 per month.
But I remember she used to Rx me Zytram XL which is also a form of slow release Tramadol, and after 3 months I was fine...? (dumb luck??)
(she probably didn't realise about the 's-s' then, or the dosage in Zytram XL is different??? more over, she told me oxyc. is fine for breakthrough pain, and here I found this:
http://chealth.canoe.ca/drug_info_details.asp?channel_id=0&relation_id=0&brand_name_id=4802&page_no=2#Precautions

so I am now majorly confused)


On Thursday I have another appmtn with my Dr,
and I thought perhaps you guys will have some advice regarding meds like that?

I am sometimes so exhausted and sore allover I am in tears. I need something badly,
and oh, another problem I have I rather can't have something hard on the stomach like Advil or aspirin sort of meds.
Tridural I tolerated quite well, so that's another plus for that med for me..

I also take Topamax and Reactine,
the last also rather on a daily basis as it's still a blooming and seeding season, not a best time for allergies.

Any advice will be greatly appreciated!

Risa



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Post  Paradox Wed Aug 11, 2010 5:45 am

Sorry to hear you are suffering so.

Boy, that link does make it confusing!!

Why no oxycontin? Just curious, it is working quite well with me.

Are they going to run any blood work to see about the rheumatoid?

Good luck!
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Post  dncr4180 Wed Aug 11, 2010 11:23 am

I don't know about other types of drugs, but I know that Frova is a slow release triptan and may be of some help to you?
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Post  lesherb Wed Aug 11, 2010 11:25 am

The narcotic in Percocet is oxycodone. It can be taken with oxycontin (which is oxycodone in extended release form). I don't know if you are aware of that or not. I don't think doctors like to mix narcotics.
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Post  CluelessKitty Thu Aug 12, 2010 12:08 am

I am afraid of Oxycontin. I am afraid of getting addicted to it.
Besides, you know how it is with getting the Rx for any Oxy.
I am afraid of constant worrying "will I get it this time? will I not?"- you know.
So I want to spare myself all that if I can. It's much easier with the lesser stuff.
And since I tried Tridural for 7 days and it worked, I figure why not something of this caliber for now, you know.

And no, for some reason nobody is rushing to send me off for any kind of tests... lol...

Risa


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Post  CluelessKitty Thu Aug 12, 2010 12:23 am

But oops, that shows what state I am in. Tired and stupid.

Well I was told the risk of serotonin syndrome from taking Tridural together with Maxalt is "medium".
If I want it very much, I still can take it, but I would have to sign an authorization form releasing my dr from any responsibility and to confirm being instructed of possible bad interaction between the drugs.

The she offered a patch - ??? Buta ???.... -trans something, which will be ready tomorrow. Is from an opioid family I think, something new, a patch you stick on for 7 days then you rip it off and stick the new one.
It releases a steady dose of medication thru the patch.

It should be OK with all I take.

I should have had it today except for the dam* rules and regulations that requires my dr to sign something which of course wasn't done properly, and seeing how it was past the office hrs when I went to fill the Rx... I have to wait until tomorrow. again sighs..

anyhoo, I am worried how will I tolerate it and how well will it work for my fibro like pains.
Topamax is working quite well for my migs most of the time, but this is new.
Well new and not new. I had these pains before for a long time but so debilitating for so long, no.
it's a first I have to take meds to be able to function because of that. yikes, I thought once my migs will be under control, everything will be rosy.
shows how much I know.... which is - pffftt!



Risa
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Post  dawn.binks Tue Aug 17, 2010 7:30 am

rheumatism is different to rheumatoid arthritus which is diagnosed by a blood test and pts are put on a toxic med as it not only affects joinnts but body organs, it is a disease of the blood.
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Post  rileyoday Tue Aug 17, 2010 1:58 pm

40-50 maxalt a month ? I think thats the most triptans i have heard of. I liked maxalt alot but the M always returned. Also triptans always made my joints and muscles painful... I dont use triptans now so they dont hurt right now.. I hope you get some real relief soon.

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Post  dawn.binks Tue Aug 17, 2010 2:10 pm

missed that..... good heavens 40-50! my question is who the hell is prescribing that quantity! change your dr and get one that actually treats migraine! o yes and get a liver test !!!
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Post  CluelessKitty Tue Aug 17, 2010 3:36 pm

My liver is fine. (so far)
And I am actually grateful to my dr for these quantities, as this is the only thing that lets me get out of bed and function.

and get one that actually treats migraine!

And how exactly do you propose to do that?

She does treat my M - I am on Topamax. Which also helps a bit.

You need to understand, not everyone is the same as you - not everyone responds to preventives as well as you,
perhaps, and the only way to live relatively normal life is to resort to daily abortive medicine.

This is what I need, plain and simple. It may not be something for you, but it is for me, and thank God I can have that!

Risa
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Post  CluelessKitty Tue Aug 17, 2010 3:37 pm

Also triptans always made my joints and muscles painful...

That's what I am worried about. Unfortunately, I need them. I am in Catch 22.

Risa
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Post  pen Tue Aug 17, 2010 5:34 pm

Risa, I totally understand where you are coming from. Preventatives dont work for me either.
I live on Triptans. They work. Not fantastically well, but I would be lost without them.
Until such time as they come up with a preventative I CAN take, that actually WORKS, this is the only way I have of trying to cope with this awful disease.

I hope you find what you need Risa.

Pen


Last edited by pen on Wed Aug 18, 2010 2:11 pm; edited 1 time in total

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Post  dawn.binks Wed Aug 18, 2010 12:48 am

i dont take any preventers but just looking at the dosage is obvious that if you need to keep taking that quantity of triptans they arent actually working. the proof that a triptan has worked is that the mig doesnt come back but if you wake up every day with yet another mig then the tritan you took the day before didnt work. as for your liver id keep a constant watch on it, my fathers liver was clear for years growing up then developed problems which suprise suprise was non alcoholic sclerosis of the liver from all the migraine drugs from which he recently died.
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Post  HeelerLady Wed Aug 18, 2010 6:55 am

dawn.binks wrote:is obvious that if you need to keep taking that quantity of triptans they arent actually working. the proof that a triptan has worked is that the mig doesnt come back but if you wake up every day with yet another mig then the tritan you took the day before didnt work.

Dawn - I'm going to disagree with you. I've had a few breaks lately (which is a first) but went over a year with a migraine every single stinking day. Triptans don't always completely eliminate them but can mask them for a few hours for some relief. Each day was a new day and often had a new M to go with it - that has nothing to do with what happened yesterday. If you get relief from it when you take it, then it's done what it's supposed to IMO.
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Post  CluelessKitty Wed Aug 18, 2010 12:39 pm

i dont take any preventers but just looking at the dosage is obvious that if you need to keep taking that quantity of triptans they arent actually working. the proof that a triptan has worked is that the mig doesnt come back but if you wake up every day with yet another mig then the tritan you took the day before didnt work.

Who died and made you MD?

First of all, you know zit about about me, yet you have audacity to 'diagnose' me.

Second, just so you know, for me the triptans do WORK,

only after close to 25 years of migraine it transformed and from infrequent episodes I developed chronic albeit of slightly lesser intensity daily M.
Whether I was/am taking triptans or not they still were/are there.

Third, if you are so smart and know it all,
since none of the preventives I tried in the past with the exception of Topamax worked for me,
and even T works only to a degree, what do you suppose I should do? and thus my dr?

Mind you, after now 30 years of M I have no slightest intention to suffer not even for 5 minutes if I don't have to. And with triptans and painkillers available, I don't.

I am not even remotely interested in suffering 15 days in a month without any medication just to have another 15 headache -free days either.

I am all ears!

Risa
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Post  dawn.binks Wed Aug 18, 2010 1:45 pm

i only quote one of the top neuro consultants and specialists in headaches in the uk, his words not mine!!!!!
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Post  CluelessKitty Wed Aug 18, 2010 2:00 pm

i only quote one of the top neuro consultants and specialists in headaches in the uk

Well let me tell you two things from my looong experience:

1. a good doctor doesn't just mindlessly repeat what he hears, he first talk to the patient, ask him questions before he makes a diagnosis

2. a lot of so called "top notch authorities" are good on their way to top. but once they are here, they are full of it.

Risa
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Post  CluelessKitty Wed Aug 18, 2010 2:29 pm

One more thing - as I am in contact with many, many Migraine suffering people from Europe,
one thing that is strongly noticeable there, UK including, is how badly the pain is under-treated there.

The doctors there almost never ever prescribe anything stronger than Codipar or Tramadol, which is our equivalent of T3
and triptans which the amount per week is very restricted, of course.

These doctors are fixated with the idea that by restricting and withholding the painkillers and triptans they are "helping" control the rebounds, avoid "habit forming" and other silliness.

Nothing further from the truth, since the prevention is also pretty weak.

Like I've said, the prevention hardly ever works for anybody. Show me anyone for whom the preventive medication REALLY works. Like, reduces from 20 hellish episodes to one weak one per month.


I KNOW, since I talk to these people, what misery is their daily life thanks to this line of thinking.

How many Solpadeine (t1) and Ibuprofen and aspirin and other OTC medications they are swallowing by bucketfuls on a daily basis because of that.
How many suffer gastro-intestinal problems because of that, how many live in agony going to work with severe M. And if the doctors wanted to avoid rebounds, they achieved the exact opposite because who is gonna withstand this horrific pain? nobody. so people help themselves with whatever available. which is, bupkies.
This is only the tip of the iceberg.

I have never ever met anyone from Europe who was prescribed Percocet for M, yet.

You call that quality of life???

I thank God everyday I live in Canada, in North America where at least some doctors are not afraid of aggressively treat pain when everything else fails.

Risa


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Post  jwar Thu Aug 19, 2010 6:23 am

Dawn,

Many neuros prescribe - and many people on this forum are on - daily triptans. I don't think any of them want to be, but it's a way of life that some people have no choice but to accept. Not just in this post, but in many, you seem to have come to this forum thinking that you know everything about migraine and that the people here know very little. All the people on this forum have suffered from chronic migraines for many, many. MANY years. We've all been through the run around with meds and doctors, and we're all doing what works best for us in the present. You really need to respect that if you want to fit in here.

Jayme
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