horrible inner ear issues..anyone else delt with this

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horrible inner ear issues..anyone else delt with this

Post  magic48 on Sat Apr 17, 2010 11:33 am

hey
for allmost 4 weeks now i have been dealing with the most horrid dizzyness..8 days ago they said i had an ear infection...i think infection is better but this dizzyness is exhausting not to mention scary...and then you worry is something going on in your head..besides migraines? anyway i see my neurologist wednesday hopefully he will tell me my head is just fine...has anybody else delt with this? just need some encourageing words here..

magic
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Re: horrible inner ear issues..anyone else delt with this

Post  pen on Sat Apr 17, 2010 11:49 am

I had this for 3 weeks before Christmas. No infection before hand. Told it was labyrinthitis.
It went on its own and had nothing to do with migraines or my head....
Just bad co incidence.
Stemetil eased it.
HORRIBLE. Sit down before you fall down kind of stuff.....I empathise.

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Re: horrible inner ear issues..anyone else delt with this

Post  LG on Sat Apr 17, 2010 12:09 pm

I'm on my cell phone or I would post a link but look up menieres disease. I am not saying you have it but it may be a diagnosis you want to bring to your docs attention. Hope you feel better soon!
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horrible inner ear

Post  Chinookgrl on Sat Apr 17, 2010 12:34 pm

My sister in law deals with sudden onset dizziness caused by the crystals in your inner ear getting out into one of the 3 ear canals. If this is it some physiotherapists can treat it by using a tilt table to try and rotate the crystals back in. I know it sounds unusual but she has had two attacks and been treated both times by a PT. I don't know if this is something your doc has looked for, just wanted to pass on information.

Hope you find a resolution soon.

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inner ear

Post  Chinookgrl on Sat Apr 17, 2010 12:37 pm

Looked it up and its called paroxysmal positional vertigo.

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Re: horrible inner ear issues..anyone else delt with this

Post  pen on Sat Apr 17, 2010 12:51 pm

Labyrinthitis is a general term. Usually more frequent episodes if menieres. That's what they told me anyway.
Come back if it keep recurring, I was told....so far, thankfully, it hasn't...


Last edited by pen on Sat Apr 17, 2010 4:08 pm; edited 1 time in total

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Re: horrible inner ear issues..anyone else delt with this

Post  lesherb on Sat Apr 17, 2010 3:58 pm

I had this years ago (and posted about at the old forum). I was given an antihistamine for the dizziness. The worst part for me was when I was sitting in my chair at my computer desk, I felt like I was tipped to one side. Very weird!

It took a couple of months for it to finally resolve itself.
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Re: horrible inner ear issues..anyone else delt with this

Post  Cindy*W on Sun Apr 18, 2010 2:29 am

my hubby started having bouts with this about 9 years ago.

He called me from work one day and told me he was so dizzy he couldn't hardly stand, so I picked him up and we went to the ER.

They told him it was inner ear and gave him antibiotics and antivert.

He probably has a recurrence of the vertigo 6 or 7 times a year so has to carry Antivert with him everywhere he goes.

When he starts to feel it come on he takes the pills and it works great for him.

You know my Mom called me a couple of months ago with the same thing.

She called her Nurse Practitioner who sent her antibiotics but she still had the vertigo bad.

I told her to call back and ask for the Antivert which she did and it helped her but not instantaneously like it does for my hubby.

I know she was just miserable.

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horrible inner ear issues

Post  dizzyflower on Sun Apr 18, 2010 4:50 am

I have had the room spinn so fast that even on the floor it feels like I'm going to fall even further.

Originally for a number of years I was told I had menieres disease and given meds that I am told since would antagonise the migraines and be making it worse, so be very careful. Eventually I went to a very high up ENT person who seemed angry that I had been told this and reffered me to a neuro.

I am told that mine is part of the aura/ sickness/ nausea ect. When I asked if it could be so severe they told me that it could very well be. They are still looking into it.

Some things that helped me were to reduce salt like they suggest for menieres and other inner ear problems. travel sickness tablets or buccastem helped save my sanity too.

I also found that using an exercise ball with pilates exercises helped (obviously not during attacks). I have learned to look at the horizon more than I did before and almost channel out the wrong signals.

An old guy who had damage from working with a drill in a mine told me that he had to do this, and he trained his eye by walking along the street focusing on one lamp post to the next and using the horizon. He did this deliberately when e was still dizzy but not at the falling over stage, to retrain his brain so that it lessened his attacks.

If it wasn't for him I don't think I could go out in pulic let alone drive or do any of the things I do today, so I hope some of this is useful.

I hope you get some relief from this soon. If I was to d this again I would have insisted on seeing both ENT and neuros at the same time to get different opinions. i think I suffered from the specialist I saw seeing their specialist problem for a number of years and it delayed recovery.

Good luck

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ps

Post  dizzyflower on Sun Apr 18, 2010 4:52 am

mine started with a history of ear infection plus a knock on the head.

hope this is of use

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RE"inner ear

Post  magic48 on Sun Apr 18, 2010 7:15 am

thanks everyone i appreaciate the info...i had head trauma 4 years ago had only had a couple migraines prior to that after was much worse and i definitely remember dizziness(the falling down kind)..i see my neurologist this wednesday then an ENT in 2 weeks....i do remember a bout of this last year at this time neurologist thought was just a virus and check back if it didnt get better..

it got better after about a month...this time they found an ear infection..have been on antibiotics..and hopefully it will improve after that...i was given the antivert yesterday but have not tried it..because i am so sensitive to meds i am afraid it will make me sleep...and i still need to function to take care of my family/

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Re: horrible inner ear issues..anyone else delt with this

Post  marion on Sun Apr 18, 2010 6:55 pm

Thanks for your post dizzyflower.
Little bit depressing for me to read as I had hoped fixing the inner ear problem would help resolve a lot of my difficulties. Obviously it didn't for you, but you did recover from the dizziness at least?
That you were told it was just another part of the aura is what has me really down.
I suppose I just want a nice simple pill that will make it all go away.
On a more positive note, I am now a Godmother. Our new baby arrived yesterday and is of course perfect.
Quote from Steve Martin movie:
"Life is like a roller coaster - up we go,down we go. Some people love the roller coaster and could ride it all day, others hate it and just want to get off."
Never heard a better analogy on life.
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