Medication holiday - any advice please

Hi. My doctor has insisted I take what he calls a chemical holiday in the New Year and is going to sign me off work for 2 weeks. I'm taking a triptan nearly every day and he's worried by it (so am I but I can't do without them).

At the weekend I was determined, come what may, not to take one and my husband hid the tablets. It's horrible I feel like a drug addict talking like this. By mid afternoon I had my own personal and quite rare 10/10 pain and nausea and caved in and took a tablet. As I'd left it so long, the migraine continued for a few hours and it was horrrendous.

So I am terrified of the tablet holiday looming in the New Year. Does anyone have any advice please on any way to handle this?

Thank you very much.
Liz

Hi Liz,

Will your doctor prescribe you something else to take for your migraines? Perhaps you should suggest a pain med or maybe even a tranquilizer to calm you down for the 2 weeks.

What are his plans after the two weeks are up? Will he prescribe the triptans again? Maybe it's a good time to try a different one?

Good luck,
£eslie

I did a two month chemical holiday last year and found it made little difference, other than having a horrendous couple of months.

Does he want you completely chemical free, or just triptans?

Charlotte (formerly Joan)

I have heard about people trying to go without triptans. I don't think I could do it, I would literally end up probably in the hospital. I get about anywhere from 8-12 migraines a month, but a couple of times a year I get a migraine that the triptans don't touch or are very slow to touch and it's such awful, mind numbing pain and all the other symptoms that go with it. From what I have read on this forum (I have been reading for about 6 months now, finally joined the other day) I haven't heard a break from triptans really doing anyone any good. I would really be interested to know the science behind it. Triptans, as far as I know, are not habit forming, and I just don't think I buy that it causes rebound migraines.

My neuro (who is also a migraine sufferer) has not suggested taking a triptan break, thank goodness. I wish you luck if you do try the two weeks, but I would definetly do some research on this and talk to the dr. again as to the reasons, benefits, etc. And I am only talking triptans, as the pain meds have never touched my migraines. I am with you though, I would be in a state of panic with no triptans.

Many years ago, I thought these "vacations" were probably a good idea. I have "been" on several. Not a one did me a bit of good.

Do consult with your doctor about HOW you are to deal with this "holiday." I wish you the best.

Hi and thank you so much for the comments and support. The doctor's reasoning is he's worried about the vascular effect, with the veins being constricted all the time and also my liver (not sure about that one). He's also convinced they may be causing rebounds. I know that's a controversial issue but I guess the only way I'll find out is to stop taking them for a while. And afterwards . . . I'm not sure, in an ideal world I'm hoping I'll go back to taking the triptans but fewer and maybe change to another one, I just don't know.

I came off Amitriptyline a while ago, perhaps I'll have to try another one. My jaw is continually rigid at the moment in anticipation (=terror!) of what's to come.

Many thanks again and I hope no-ones feeling too bad today.

I love all your pictures (I keep watching that gorgeous polar bear) but am not brave enough to post one. Perhaps I'll download one of the cat

Liz

I took a drug holiday last year for 2 weeks. It wasn't so bad.. made me realize that I wasn't in fact getting rebound headaches. However, in the end it did nothing for the frequency of my headaches.

You could see if your doctor could prescribe something like a short course of prednisone.. I have done this before to help break up long days of taking triptans.

i also took a drug holiday, and it was bad but afterwards it became okay, i dont touch triptans now because they dont work for me, so there is light at the end of the tunnell. dont become an addict, stay strong

hi i have had 2 drug holidays, but both times i started a preventative or upped the preventative that i was already on, so i dont know if that counts, i have just sent pen a reply about breaking the cycle of a continuous migraine, have a look and see if there is anything that could be of use to you, i would speak again with gp and see if he meant for you to go cold turkey or was he going to provide you with something to help, keep in contact with him/her so you dont feel so alone when you do this, most of us have been there so you arent on your own, xx

Hi and thanks again for all the advice.

The trouble is, the doctor is determined I should be totally drug free for a short while, which sounds a good idea in theory but I can see the sense in taking something else to numb the effect. I'm going to go back to him between Christmas and New year and have a good chat. I haven't got enough tablets to last until the 'holiday' ha ha starts anyway.

Hope you're all OK.

Liz

Liz,
I believe I see you on MAA forum as well. I have very mixed views about the medication breaks.
Many try, some find help, many more end up right where they started having gone through hell. With respect, (and not personal) if you can manage without the med, why are you taking it in the first place......seems a very hard thing to do. How many of us would do this to ourselves if we felt we had an alternative???

We are always being blamed for making ourselves worse because of the medication.
I dont know of any other pill pushing condition that has to endure this.....Why is it just us....
I am not saying it isnt a problem it will surely be for some people, but Andy Dowson told me it was about 5%....
If that is true then what is wrong with the rest of the 95% of us....

I wish you luck Liz, and admire your courage and strength.
As you will have grasped, I am in a big mess, but I keep giving in to the pain relief and have been advised by MAA to take them for now because
untreated pain is harder to deal with....
Confused... Me too.
About time somebody made some proper sense of all this instead of making us even more stressed by trying to be both patient and doctor.
Good luck m'dear. Keep us posted, and don't wreck your Christmas. There's always next year...
Pen

Hi Pen, yes it's the same me! When the revamped MA site started up again, the forum was never the same and I really missed the contact and support. It so helps knowing there are others out there in a similar situation. And there are bucket loads on here . Thank you to everyone. Our lives are all so diverse, yet we've all got this common monster to deal with

It is confusing I agree but maybe I am one of those 5% and will never know until I try. Like you I hate it each time I take a triptan, especially as I've got other symptoms which they could be aggrevating or causing (pains in chest and back, etc). I'm just emerging from one at the moment and if it wasn't for the triptan, I'd still be lying down upstairs and our poor bare tree which my husband put up a while ago would still not get decorated. You have to take them to exist.

I'm sorry you're going through such a bad time too - it would be great if someone could make some sense of it but I don't think they know themselves. Like so many illnesses, they know half of it but not the whole story.

Let's hope we may all have some respite at Christmas

Liz

I must just add something my GP said. He's generally very good and I respect him. However after I'd reacted to his insistence of a drug holiday by shock and I'm afraid a few tears, he said 'play some music or something'

He admitted he'd never had a migraine.

Liz

Play music?

Sounds like the doctor who told me to go fishing or something. Um, yeah. (Besides the fact that I'm a vegetarian!)

Does anyone have any references to studies that prove rebound is a real thing?

Anna

A delightful, but old fashioned neurologist once told me that I should take long walks and get my husband to help more with the house and kids. He was actually a very intelligent and deep thinking person, and I respected him, but he just did not know chronic severe pain.

Norma