Got some feedback from someone who met my neuro

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Got some feedback from someone who met my neuro

Post  pen on Mon Mar 15, 2010 6:29 pm

Bit disconcerting really. I have always felt he is very nice, but doesnt offer anything but more drugs, more preventatives that I cant/wont take. I dont know if, as she has basically, without prompting totally echoed my feeling....I should try to find another one.
What would you all do please? I am n the UK so it isn't down to money, but I would need a referal from my GP.
Cheers

pen

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Post  lentils on Mon Mar 15, 2010 7:34 pm

what would you like him to do? maybe you could tell him what you want?

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Re: Got some feedback from someone who met my neuro

Post  TheBookworm411 on Mon Mar 15, 2010 7:46 pm

Every time I encountered this problem I gave the neuro a few chances then switched to another neuro recommended by other migraneurs or my insurance company etc. Eventually....last November i found the best neuro in our area. I actually found out that he was consulted during my 2006 hospital stay and I never knew because I was out of it. He had all of my records and great new/old prevention medicines to try. He also told me about the Michigan Migraine Hospital which I now have an appt for April 13th. I wouldn't put up with neuros just giving me pain meds because I am out of work and I need to get back to to work and pain meds aren't going to cure me.
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Re: Got some feedback from someone who met my neuro

Post  pen on Tue Mar 16, 2010 6:37 am

I am due to see him in 3 weeks, not sure what to do now.....will be more of the same.
He did allow me 12 Migards a month, but other than that...

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Re: Got some feedback from someone who met my neuro

Post  Ivy on Tue Mar 16, 2010 8:20 am

hi Pen,
a second opinion/point of view is always good, especially when you feel that a doctor is not doing his best to help you....
Bye
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Re: Got some feedback from someone who met my neuro

Post  estre004 on Tue Mar 16, 2010 8:39 am

Pen - I'm not sure if there is anything else they can do. I just quit going (after the Topamax). I felt like he was trying to kill me. I'm in a different situation than you though because my abortives work. It is interesting that these were prescribed by my GP and not my neurologist though. My neurologist is big on the "preventives". I don't like the idea of putting that crap in my body everyday, bad enough I need stuff to abort. I would rather experiment with natural healthy stuff. My neurologist is actually suppose to be a really good one too so changing to a different one wouldn't help me much.

By the way, I'm kind of excited about the Banjo. I used it last night. Way too early to tell if it really works--the ingredients are right though.

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Re: Got some feedback from someone who met my neuro

Post  moominamy on Tue Mar 16, 2010 9:07 am

Hey Pen,

Well, he is a medical doctor, preventatives and abortives are really the mainstay of what he knows and has to offer. What other things are you expecting him to do? If he is unaware that you do not want to try preventatives he will keep trying with them. So you need to be up front with him and discuss what other options he may be able to offer instead. I agree with lentils.

Also I wouldn't be too worried about other peoples opinions of your neuro - it is what you think that counts here. If you are having doubts because he has just suggested preventatives up until now then talking through other options first and giving him a fair chance seems sensible.

Is there any chance you could go back and see Dr Anne MacGregor at COLMC? I know you thoguht she was helpful in the past and she does specialise in hormonal migraine. I'm aware that you find the travel difficult, but if you are not happy with things as they are you'll have to expand your search which would probably mean more travel anyway. As it's a charity and you can self refer I doubt it will matter that you were discharged from them all that time ago.

What is it you would like him to do/suggest during your appointment?

Amy

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Re: Got some feedback from someone who met my neuro

Post  pen on Tue Mar 16, 2010 11:47 am

Okay, reply I should have expected, but my post was brief and perhaps more detail need. My fault.
1: I have discussed my reluctance to take preventatives each of the 3 times I have seen him.
2: We haven't ever really discussed what else I might try, even though he doesn't think I have MOH, he said I don't take nearly enough of anything and gave me more Triptans so that I wouldn't increase the OTC and stay free of it.
I have asked about complimentary medications, but he says he doesn't use them so cant comment.
3: It isn't just one person who has made the comments.
4: Yes I would love to see Ann McGregor again Amy. I contacted them and explained my situation but they wont deal with me other than in person even though they have seen me before. I was told they might, but no.

Last but not least he is very nice, I do like him, but that wont help me if he is only prepared to give me drugs I don't want.
And he only does morning appointment which are very difficult for me with the Fibro. Possibly only other fibro people on here would truly understand that one. But fibro and migraine is a killer for mornings.

I hope that addresses all the comments, thanks for them guys.

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Re: Got some feedback from someone who met my neuro

Post  pen on Sat Mar 20, 2010 7:28 pm

I am now making notes so that, as advised I dont waste my time with him.
I intend to get the best I can from this appointment.
If lead with my questions, then hopefully we can stay on them and not more preventatives.

Amy I did send you a PM. I guess you didnt see it.
Trying again with COLMC

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Re: Got some feedback from someone who met my neuro

Post  moominamy on Sun Mar 21, 2010 6:33 am

Sorry Pen, I missed it. I think your strategy above is great, I really hope it gives you a better outcome Very Happy

If you go in all prepared and lead the helm he might not know what's hit him. Get him working hard for his money and don't give up!

Take care

Amy

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