Please help...

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Please help...

Post  Guest on Tue Mar 02, 2010 10:31 am

I just joined to-day. I have daily excrutiating headaches and migraines. I have found no effectiveness with anything I have tried. Any suggestions or input? I feel I won't last much longer. I await any ideas.

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Re: Please help...

Post  Brain Pain Mom on Tue Mar 02, 2010 10:34 am

Welcome to a wonderful support system. I am sorry that you have to be here, but there is a world of information here as well as trial and error. flower
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Re: Please help...

Post  alli on Tue Mar 02, 2010 10:44 am

Welcome to the board. I'm sorry to hear you are having a hard time. Are you seeing a Neurologist or at least your regular doctor about your headaches? There are preventative medications that can help with migraines and daily headaches.

Are you taking anything for them and what are you taking?

Alli
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please help

Post  rileyoday on Tue Mar 02, 2010 10:46 am

Hello gailgigi, I had the same as you for six years and for 2 years it was horriable. I found relief every now and then,

enough to keep going. I really thought I had tried all the preventives and had all the tests. 4 months ago I was given a new

preventive by a Dr. I was not scheduled to see. I breifly told him my story he gave me a script for clonidine it worked right away

and it does not cost alot. Please keep trying to find your relief. We are all different but some on here are getting help.

You could be next. Read some old post look for some things to try.

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Re: Please help...

Post  LG on Tue Mar 02, 2010 12:33 pm

Hi gailgigi,

I have chronic migraines and get them 3-4X a week. I am currently taking 200mgs of topamax daily (expensive FDA approved preventative medication for migraines, also for epilepsy). I had lots of side effects but most of them went away after the first 3 months. It works okay, definitely reduced the severity of my migraines. It reduced the frequency a little as well. The biggest benefit is the migraines became more treatable with medication. I am still trying to find a daily dose that works for me, my doctor keeps upping it in hopes that the topamax will work even better than it does now.

If you are concidering trying topamax please research it thoroughly. Some side effects, although they are rare are very serious.

I take fioricet with codeine for the attacks because triptans (imitrex, frova, maxalt ect.) do not work for me. I use this med as needed despite the rebound headache warnings. I say follow what advice your doctor gives you on this one but I have yet to experience a rebound from using my meds so I just take pills when I need and take medication holidays when I can to avoid dependence.

Even though triptans don't work for me I still have a stash of them around the house (all different types) to try because when I'm desperate, I'll give anything a shot.

I take stadol when I cannot break a migraine with the fioricet. Stadol is a strong narcotic medication that I only use a couple times a month, if that.

I also have a steroid pack at home in case all that fails.

I think this is the situation for me and having all this medication is a bummer but relieves a lot of stress knowing I can abort a migraine without the worries of an ER trip. I think that finding a doctor to give you a rescue pack like this is a huge benefit.

Hope this helps and you feel better soon. Welcome to the forum!
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Re: Please help...

Post  WitsEnd on Tue Mar 02, 2010 1:09 pm

Hi,

I have tried several preventatives but beta blockers work best for me, that's not to say they will for you but you should ask your doctor. The beta blocker Atenolol has given me my life back.

On here we have all tried several different things, some work for some people but not for others. I'm afraid a lot of it is trial in error.

welcome to the forum and sorry you are suffering Sad
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Re: Please help...

Post  sailingmuffin on Tue Mar 02, 2010 4:26 pm

Hi and Welcome to Ronda's!

I got my first migraine at age 12, but they became chronic at age 17. I am now 29 and still battling migraines. However, I have met many wonderful people through this journey, was able to attend an excellent college and earn a degree in english literature. I have some graduate school credits in education (I had to abandon grad school due to constant fainting.) I thought I'd include this because you sound like you are at the end of your rope and I wanted you know that people can live with chronic migraine.

I think I have seen about 20 doctors or specialists about migraine, I am on daily preventative medication and I do need some pain control.

Are you currently seeing a neurologist? If not, I'd recomend finding one who is a headache specialist. It may take a while to find out what works for you.

Preventatives are good, but it does take some time and effort to find out what works. Preventatives do not work immediately.

Abortives are meant to stop migraine attacks- triptans, migranol are well known abortives.

If the headache is stubborn, it may be time for steroids pack- juust as another poster suggested.

I hope I am explaining stuff well. Just want you to know you are not alone.

Pain free days,
sailingm
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Re: Please help...

Post  AuntieBubbs on Tue Mar 02, 2010 7:42 pm

Hi, and welcome to the board!

This will be brief, I'm in a bad migraine phase this week brought about by rainy weather, one of my triggers. Was feeling horrible today, thought I felt a bit better this evening, now back to feeling bad.

I've been getting migraines since I was a young teenager, but not chronically until I was around 22. Was diagnosed with chronic migraine when I was 25. I've tried the whole range of triptans as abortives. Have tried vicodin, doesn't work for me. Tried migranol - I think that's an ergot (sp?) but I'm not sure, that was a long time ago. It didn't work for me at all. Just made me really stuffy as if I had a head cold, and made me feel even worse. Have had torodol injections as well, didn't work.
As preventatives, I've tried calcium channel blockers, beta blockers, nuerontin, and topomax. Probably some other things that I don't remember, too.

Like LoveGia, I take topomax and find that in general, it helps alot. I used to get really severe migraines and very frequently. With daily topomax (100mg a day) I'm down to, in general, really severe migraines about 2x a month, unless the weather is like it has been lately, then all bets are off. That's a big improvement for me.
I still get "low grade" migraines weekly, like level 3 or 4 migraines, 2 or 3 times a week, but I can function with those because I'm used to them.

I take triptans with a decent level of sucess. I take tramadol and advil in combination with the triptans and find the triptans work better when I do.

As a rescue medication, I take stadol as well. It can knock out those level 8 migraines when nothing else can. It's a godsend medication for me.

Hope this info helps. This board is a wealth of info too, we've all tried so many remedies and will share our experiences to help each other out when we can. You're definitely among friends and sympathizers here.
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Many thanks

Post  Guest on Wed Mar 03, 2010 8:08 am

Thankyou for all the posts. You sound like a very supportive group. Glad I joined. Gail

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