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Post  sailingmuffin on Wed Nov 12, 2014 5:32 am

Hi All,

I meant to post this earlier, but just didn't around to it.

I got my first migraine at age 12. They would last anywhere from a few hours to a week. I might miss half a day of school or something. But all that changed on October 28, 1997. This is the story of how it all began.

It was a beautiful fall day in Baltimore, MD. I was playing field hockey- it was the last game of the season. Suddenly, as I looked down the field, I began to see zig-zags and the other team turned into big purple spots. I knew what was happening- I was getting a migraine. I looked at the coach and she pulled me out of the game and sent in a substitute. I walked up to the infirmary to get my migraine medicine. I thought it was just another migraine and would go away in a few days or a week. I had no idea that my life was about to change forever.

I got my first migraine at age 12. The headache would last a few days or a week. I would simply take the Tylenol 3, rest, maybe miss half a day of school and then it would get better. But this one was different- it didn't go away.

On my 17th birthday, I saw my fist neurologist. He diagnosed my with migraine, prescribed Imitrex, a steroid course, and ativan for sleep. This was only the beginning.

Since that October day,
I've taken more medication than I thought possible.
Seen so many neurologists that I have lost count
Had friends drag me kicking and screaming to the ER because they couldn't stand to see me in pain.
I've been hospitalized 5 times.
I've been at seen at 4 headache clinics.
Seen some of the top neurologist in the country
Graduated college and high school on time- (something several doctors told me would never happen.)
had 2 radiofrequency procedures
had an occipital nerve stimulator implanted and have had 4 revisions.
learned that college students will do anything for food. (If you can take me to the doctor, I'll buy you dinner.
I've mastered bribery.
I've mastered the art of faking it until you make it.
Shortly after the headache began, my mother said, "Take the meds, put on the dress and smile/" This has become my motto.
I've had a friend draw a military plan to get me to the dr.
Navigated the intricacies of the medical world.
Learned the meaning of true friendship.
Had several rounds of botox
More IVs than most have in a lifetime
learned that faith and a positive attitude are great assets.
-justified purchases by thinking- well, the book will help and it is cheaper than an ER visit.
-connected with so many people fighting this disease.
I've learned to keep fighting.

Shortly after I was diagnosed, I found this website. I also found that I was not alone. Over the past seventeen years, y'all have been there for me in so many ways. You have given me great advice, listened when I needed to vent, cheered when good things have happened, simple been here. I haven't met a lot of you in person, but I consider all of you to be great friends. Thank you!

Pain free days,

also- there is a full post about this on my blog How it all began- adventures in falling


Posts : 550
Join date : 2009-12-05

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Re: Migra-versary

Post  Kem10 on Wed Nov 12, 2014 5:58 am

Hi sailingmuffin, just wanted to send some hugs and as you know, you are not alone. Those of us here truly understand. :hug :hug

Posts : 229
Join date : 2013-10-27

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Re: Migra-versary

Post  Migrainegirl on Wed Nov 12, 2014 5:56 pm


You have been through so much and continue to do so admirably. You are an inspiration!
Here is to someday celebrating the anniversary of a cure for migraines.

Posts : 999
Join date : 2010-07-19

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Re: Migra-versary

Post  Mini on Fri Nov 14, 2014 2:04 pm

Congratulations should be in order for any other anniversary, expect this one. If there are congratulations to be offered, is for the fact that you have survived and remained sane. Not an easy task, we know.

It is also very brave of you to go back and to recall it all. It must brought much additional pain and bad memories.

Yes, I remember this forum starting too, the history, and all the people who passed through it's pages. It was not always a smooth ride, but most of us came back time and time again, we met some truly remarkable people (unfortunately there were destructive groups too, in the past), but we've all learned so much and made some lifelong friends, and learned so much from each other.

I don't know how one could combine all the knowledge that we benefited from here, except following these, and reading each other mails. How can we pass it on to all those arrogant neurologist, who are so determined not to want to know about the true experience of M, because they have so many preconceived ideas about M and about how we feel.

Thank you for sharing your experiences with us, you contributions are always much appreciated, and this was a most interesting, if heart-breaking,account of life with M I have read in a long, long time.
Thank you.

Posts : 855
Join date : 2010-11-06

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Re: Migra-versary

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