Hemiplegic Migraine

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Hemiplegic Migraine

Post  purple19m on Sat Feb 08, 2014 4:30 am

I had mild migraines through childhood and then migraine with aura in my late teens, my real problems started after the birth of my first son, I was ill for months and had to wait a long time for a diagnosis which the neurologist eventually gave me as Hemiplegic Migraine.

After trying Amitryptyline and Propananol which did not work for me I then got prescibed Pizotifen, the difference was amazing very quickly I felt normal again, and it especially helped the dizziness I had constantly for months.

However I am currently getting hemiplegic attacks when I ovulate and when I have my period which I guess ties in with the start of my Hemiplegic attacks ( I assume due to hormonal changes after pregnancy)

I have been prescribed topirimate and verapamil in the last month due to an attack during my period which ended up in me being admitted to hospital. Right now I feel exhausted and if i'm around too much noise or lights I feel the aura come on and my left side weakens, I have been taking baby aspirin which helps take the edge off.

I hate taking any medicines as I am very careful about what I put into my body, I do not wear any perfumes, have stopped eaten gluten,red meat and anything sugary and my diet mainly consists of fruit, veg,rice, chicken and eggs.

When I take topiramate I feel unstable on my feet and extremely depressed and when I take Verapamil I feel too exhausted to move which again leaves me depressed.

I have just added B2, Magnesium Citrate and Feverfew to my routine and I have been taking a multivitamin and Omega 3 for several years now and along with Pizotifen and diet changes have my attacks down to two a month, if I can just find a way to prevent the hormonal ones I think I would be able to get on top of these attacks.

As my doctors are at a loss of how to stop them without hormones I am left with trying different prescription meds until something prevents them. I have tried two mini pills but this led to constant migraine aura, and I know hormones can cause me more harm then good.

I would grateful if you could provide me with any information that may help me beat the beast, I have done a lot of research but the outcomes are usually either Hemiplegic or Hormonal solutions and mine is a combination of this.

Again I thank you for your time.


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Join date : 2014-02-08

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Re: Hemiplegic Migraine

Post  Seaine on Sat Feb 08, 2014 2:18 pm

The only advice I can give you is what has helped me - I stopped eating all artificial food colorings and found a huge difference. I still get my migraines but they are now manageable and don't take away my life anymore. Artificial food colorings may be in a lot of the things you eat, it is probably in your toothpaste, and it is definitely in some of your prescription meds. I now wonder if that's why none of the meds worked for me - most of them were actually making my problem worse by giving me one more dose of artificial food colors daily! Although I don't have hemiplegic migraine nor do I have auras, I have standard migraine without aura. Still, that doesn't mean what helped me can't help you also.

I do take the mini pill because I also found my migraines to be much worse on my period. However, there is one and ONLY one brand of mini pill that doesn't contain any artificial colors, it's Nora-BE. If you discover that artificial food colors affect you, that may be something to look into.

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Join date : 2012-07-20
Age : 31
Location : Florida, USA

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