How do you keep going??

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How do you keep going??

Post  gailgigi on Tue Mar 26, 2013 2:57 pm

How do you keep going? I am completely dibilitated by chronic daily migraines. I have not had a pain free moment in 13 years. I do not leave my home due to pain. My days are spend going from bed to the couch back to bed again. This is my life. I truly don't know why I keep going. I know this is how I will live out my life. But something in the recess of my conciousness can't quite let go. If I let go now what if it's just moments before some kind of help comes. My intellect knows this isn't going to happen. Yet, I keep going. I am 64 and know this is how I will die. In pain. I heard of a woman, a couple of years ago, who killed herself due to migraines. I think how courageous she was. How do you keep going? Why do you keep going? If you asked me that question I wouldn't have an answer.
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How do you keep going?

Post  doximom on Tue Mar 26, 2013 7:59 pm

How I feel for you. Honestly, when you are in so much pain, I think you keep going because you simply have no other choice.

I hope and pray for relief of your pain.

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Re: How do you keep going??

Post  Seaine on Tue Mar 26, 2013 8:51 pm

I saw someone else on this forum say this awhile ago, but I believe people like us will have a special jewel on our crown in the afterlife, so to speak, for enduring this. Bad things do happen to good people. It's not fair and it's not our fault, but much later we will know all the answers.

Please speak to someone you know in real life about this too. People care, even strangers like us care.
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Hello

Post  gailgigi on Wed Mar 27, 2013 11:19 am

Thankyou for the two responses. It's nice to know that there are people out there who are empathic.

To Seaine: Yes, that is one way of looking at it. That things will be better when we die. I have no doubt it will be. It's very difficult to stay in touch with that way of thinking. Still, this is almost impossible. What would the reason for this be? We get brownie points for suffering? It's all beyond me. Thanks again for your helpful input.
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Re: How do you keep going??

Post  dcook60 on Wed Mar 27, 2013 6:41 pm

gail, you have my compassion as well, for your unbelievable saga of pain. i know you've probably tried everything there is to try, as i have, for 44 years.

yet, i did find 3 drugs that help me have a life. maxalt and amerge, both triptans, and ativan, aka lorazepam. L. is physiologically addictive. for some people it is also a drug that makes them "high", i guess.

i take it ONLY at night; otherwise i would get practically no sleep. even now, at the highest dose i've ever taken, it takes me 1-2 hours to get to sleep. so obviously i'm building up a tolerance, and will have to back down the dose if the non-sleeping gets worse.

this is the drug they use in hospitals A LOT, for anxiety and calming down a patient. in my case, i don't seem to be anxious, but my body forgot how to sleep 25 years ago.

and here's the clincher i was going to mention. SLEEP. all-important for me, at the minimum 8 hours and preferably 9. (i don't have much of an evening, after working 5-6 hours and coming home pooped.)

if i get more sleep, i don't have to take as many triptans. it's as simple as that. if you've tried all these things, please forgive; i don't have time now to look up your history of posts.

you are wished well by all of us, i'm certain of that. the way i look at the pain scenario, is that we will know part of the answer when we pass on to the next realm. religious discussions aside, after 2 lengthy spiritual-type experiences in my life the past few years, i learned lots of important lessons which gave me some peace on the matter.

personally, i keep going because i love life, and appreciate all the good in it. also, i have children and grandchildren and a great-grandson who are precious to me. some days are rotten, but even on those days, somehow, i am able to give thanks. sorry if i offended anyone by the "sermon".

gail, again i wish for you love from your family and friends, and can't fathom how you have endured this kind of pain for all those years. YOU are the courageous one!

dianne

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Hi Diane

Post  gailgigi on Thu Mar 28, 2013 4:38 pm

Hi Diane: Thanks for your reply. I think what another poster said is true. I keep going because there is no other choice. I do not see myself as courageous. I see myself as a person who has been given no other choice. There is no courage in that. Courage would be to end it.
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Re: How do you keep going??

Post  slogsdon on Fri Mar 29, 2013 4:52 pm

Gail,

I just read your posts, and I wanted to direct you to another member's experience with a new block procedure for her migraines. When you have a moment, check out chandlertoo's posts under Head & Neck Nerve Blocks, Page 2. She suffered from chronic daily migraines for 38 years, had this sphenopalatine ganglia block procedure (SPG) with the SphenoCath by Dr. Raul Weston in Utah, and went pain free for seven weeks. Her migraines returned, but only three times a week thereafter, and she went in for another block procedure. She also describes how they did her procedure in detail.

This SPG block approach to migraines has been described in the medical literature since 1908. But the challenge has been the delivery of lidocaine to the sphenopalatine ganglia area. Check out the uTube links below to see how Dr. Weston performs this block. I don't know if it will work for you, but it certainly is another option to explore. Take care. Steve

http://www.youtube.com/watch?v=4ZlYLXP6sXQ
http://www.youtube.com/watch?v=Bn7Rk8K0ldA

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Re: How do you keep going??

Post  greent on Tue Apr 02, 2013 12:18 pm

Hi Gail,

I empathize, as you know... I'm so sorry nothing as gotten better. I ask myself the same question many times. I've made baby steps in getting better, but I also wonder if I will ever get better or if I will ever get used to living with this pain. I take several daily medicines for my ailments, but one of them is a painkiller prescribed by my neurologist, who works in a pain clinic. A lot of people may advise against taking painkillers saying they're addictive or bad for you, but they help me live my life right now- get to work, go to social functions etc. and that's what they're for- for people in pain. Have you tried this or to see a pain specialist? Just a thought. I pray that yours, mine, and everyone's chronic pain gets better with time.

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How do you keep going??

Post  doximom on Wed Apr 03, 2013 11:50 am

People who say you shouldn't take pain killers aren't going through what we're going through! If it means the difference between being incapacitated and living a relatively normal life, I consider them lifesaving.

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Re: How do you keep going??

Post  Pinkballerina on Wed Apr 03, 2013 5:46 pm

I am terribly sorry you are going through such a hard time. I, too, understand. I can no longer work due to the migraines. I was never able to carry a pregnancy, in my opinion, due to the meds I was on for migraines. I had to quit law school because I began having severe seizures and memory problems...I believe these issues were also related to having migraines. So many dreams in my life have either been ripped from me or I have been forced to give them up due to migraines.

How do I keep going? Not to offend anyone, but there is only one thing for me that keeps me from ending it all on the worst days,,, and that is my love of God, which in turn makes me love myself since we are all a part of Him. I know my suffering here on earth will not last forever, no matter how tortuous it may be in the moment. Just yesterday I was in so much pain I was literally crying and begging on my knees for my husband to take me to the hospital, which he refused to do (for a multitude of good reasons...but you couldn't have convinced me of that yesterday). The Lord helps me press on, no matter how much of my life I have lost to migraines, no matter how many of my greatest dreams I have lost to migraines. ALL of those things...even ultimately the pain of a migraine...are temporary. But the afterlife I will pass on to when I am gone from this one will be forevermore.

Please hang in there and know you are not alone in fighting the daily migraine battle. Beds, couches, and chairs across America are strewn with the bodies of those of us in too much pain to even take a step outside the door into the sunlight unless we absolutely must. We are a silent group, but we are many. Far too many. Our great number alone is a testimony to the failing of the medical community when it comes to the treatment and management of migraine. It would seem that this should not have to be such a gravely disabling and misunderstood condition by both the medical community and the public at large.

But, again, know you never suffer alone.

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Re: How do you keep going??

Post  Cathy on Thu Apr 04, 2013 8:27 am

Here is the only thing that keeps me going and from ending it all - I have grandchildren. My grandson is 8 and my granddaughter is 4. They do not have a good life because of bad decisions on their parents' part. Anyway, when I think about killing myself (calling it what it is) I picture them telling my grandchildren that they won't see me anymore and I picture what they will go through and I just can't do it to them.

I'm not in as bad a place as you are, though, so I feel for you. I was almost as bad as you but I've been treated for Lyme disease and while it's better, I still live on painkillers, muscle relaxers and anti-nausea meds. I had migraines before the Lyme disease but then they became chronic and now I have some hours without much pain. So I really feel for you and the level of what you're going through.

I think we've all been given more than we can deal with and we have to live day by day. And I don't blame anyone who gives up and checks out because they can't take the pain. No one knows unless they suffer like us.

Cathy

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How Do You Keep Going?

Post  4everdoll on Thu Apr 04, 2013 2:22 pm

If I didn't know better, I would have thought your post was written by me. We are the same age....64...and I feel so bad that anyone has to endure these horrible migraines. I ask "why me" all the time, and am waiting for something to come along to help me, but it never does. I have no life, and I mean no life. The migraines have been so bad that I have stopped taking part in life. I no longer drive, clean my house, cook or do any other things I am supposed to do. I have a very loving, and supportive husband, but I actually wonder how much longer he can hang on with me and what I have become. It really stresses me out each day that I can't be the person I once was, and wonder how much longer I can go on with no relief. It has taken it's toll on my body in many ways, and I am in too much pain all the time to try and do better and be more healthy. it seems all I do is go from the bed to the couch, and pain pill to pain pill. I don't know what the answer is, but I totally understand what you are going through as I am experiencing the same thing. If you want to reply by email, please feel free to do so: 4everdoll@comcast.net. I would love to hear from you and be of some kind of support to you. Take care.

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Re: How do you keep going??

Post  sailingmuffin on Thu Apr 04, 2013 3:46 pm

Hi,

I am 32 and have had chronic migraines since age 17. There is one thing that my mother said to me about three weeks after the headaches became chronic. It was on my brother's wedding day (I had been in the hospital overnight just 2 days before, the mother of the bride was at the top of the transplant list- she got one six weeks later- so I was way down on the chain.) she said, "Take the Tylenol 3, put on the dress and Smile". Strangely, that is what I have done a great deal of the time. You just keep going- you take the meds- you laugh trough tears- and smile.

My mother- who has had chronic pain fro years and who really taught me ho w to deal with it- taught me that you keep going, you smile in public, you crash and cry in private. You do things and crash afterwards. (of course, I get yelled out for taking the meds going to events and then suffering a really bad migraine and when I said -look, this is wwhat you do. she relents."

Faith in God has always kept me going.

Friends have too. Many of you have kept me going.

We all have those horrible days. or periods where life gets so small it is from one bed to another- but the secret is in knowing there will be better days or hoping there will. If you are in one of those horrible bed to bed periods where life has gotten small- the only thing I can say is talk to us or call a friend-even one you haven't talked to in a while. take a walk. ok, these things probably sound way too trite, but it has helped me.

Just hang in there if you can!

sailingm
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Re: How do you keep going??

Post  fxky on Mon May 06, 2013 2:57 am

I do what I have to do. Medicate heavily and try to continue with my life. It's the only solution I've found.

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Re: How do you keep going??

Post  Don13 on Mon May 06, 2013 6:27 am

OMG that is awful, I can't imagine what you are going through. I have had migraines for 20 years mostly at least 1-3 per fortnight lasting 2-3 days each as I got older they did drop to 2 - 3 a month & this was unbearable enough.. It must be so hard for you & the people around just don't understand if they haven't been through it..
I feel for you & wish there was something I could do. Keep strong & i know you would have tried anything & everything to try to stop them but keep trying all that you can there must be something out there.

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Re: How do you keep going??

Post  Don13 on Mon May 06, 2013 6:45 am

I feel for you it's awful & we all know that suffering with migraines adds many other issues, Anxiety, Depression the list goes on, I have suffered quietly with depression & anxiety since my migraines started at she of 14, trying to hold down a job whilst many people criticised me saying I did not want to work was one of the hardest things I had to deal with.. If you ever need to talk we are all on here to support you & listen.. Don't give up, there will be something that can help.

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Re: How do you keep going??

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