The Monster is Back

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The Monster is Back

Post  BabySeal on Sun Apr 15, 2012 8:39 pm

I have one of my grizzly monster migraines this weekend. I haven't had one this bad in a while with ALL of the symptoms, hard to break the cycle, pain level.

I also have a baby who's body is NOW deciding to cut teeth after all. During a M attack? Shocked Thank you, Murphy's Law. If I could vent for him, his head hurts too bounce

Both of our worlds suck at the moment.. for lack of a mature way to explain.

Counting down to my Neuro Appt. I need new home meds. My fear is just being shrugged off at my appointment (hoping for the best though! will have to see how it goes!). I will not just be content upping my Tpoamax, or changing triptans. Somethings gotta give. I need to start preparing myself for the appointment all on paper because my memory is SHOT and I cannot go in without things on paper completely written out.

I need to become functional in my life!

Today when I said I had a bad headache I was told by someone in an unsympathetic tone "Ugh you have one ev-veryday", it brought be down it really did. I felt guilty then that I had used it as an excuse... but rightly so- I was on the verge of tears and vomiting.

Tomorrow will be better, I know it Smile I hope you all had a wonderful weekend.




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Re: The Monster is Back

Post  Mini on Mon Apr 16, 2012 5:10 am

Don't ever feel guilty about feeling unwell BabySeal - this is not an excuse, this is your REALITY.

Some people might use a "headache" as an excuse, but migraneur never does.
It is much more likely that we pretend that we are fine, when we are feeling really sick. I am sure you never use M as an excuse, unless this is a real reason you cannot work, ro concentrate, like in this case.

I am so sorry you are hurting so much at the time when you little boy is teething as well.
If you cannot treat your ownw pain at the moment, maybe youi can concentrate on treating your little boy so he is not stressing you as well; just make sure that you have all the things for teeting like gels, and some mild child suitable painkiller to bring down his temperature (babies often run fever when they teeth), so at least he is more comfortable and you can have your rest.

Taking a list with all the question for neuro is vital, I always do that.
Just make sure that you mark them in order of importance on the page, one by one, in case you are interrupted, or distracted.

Also write the question in large letters so they "jump out of the page" for you when you glance at them in front of the Dr.

I also ask my Dr in the beginning:
do you mind if I ask you some questions, I have them written down here.

I have been told by a Dr friend of mine, that Drs do not mind, in fact they prefer it, since it often saves them time when the patient comes well prepared.

I have seen my Neuro recently and I had my usual list.
I am lucky my Neuro is really great and we have a good relationship anyway, but it took time to develop to this point that I can trust him and I see that he trusts me. I also take my h/a diary of the last month or two, and he loves that.

My head is not too bad at the moment, but I still have an opportunity to call his secretary to arrange to have another occipital nerve injection, if and when I need it again. (It has been helpful to me in the past).

If you have never tried this, perhaps you want to ask him about the injection, as well.
But they must have a lots of experience in giving this, as it is crucial to get to the right point, and unless they have plenty of practice in these injections, it ends up in disappointemnt for some people.

The most important thing is to have a neuro who specialises in migraine (not just "a neuro") since many neuro know little, or nothing about M.
Have you checked him out? Does he specialise in M pain?

When are you seeing him?
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so sorry

Post  chelle8178 on Mon Apr 16, 2012 1:18 pm

Sending you hugs and prayers for pain free days!

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