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not right....

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Post  Guest Sat Dec 11, 2010 4:31 pm

this pain is not right. It is unfair. No matter how one looks at it. We are not on this earth to spend all our time in bed suffering. If there is a God as some people believe, he is a vicious one.

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Post  AZgirl Sun Dec 12, 2010 8:56 pm

No, it's not fair. It's awful. I won't touch on the religious theories because there are so many.

But you are right, we shouldn't have to spend so much time wounded, suffering, ailing, and hurting.
AZgirl
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Post  rileyoday Mon Dec 13, 2010 3:52 am

hello gail, I have read your posts before and remember we had similar problems. I have been controlling my M for over a year now.

It was very sudden relief and has continued to work. I had a second problem of 18 months that I just got relief for. I had severe muscle

pain that continued to get worse. Lots of tests, 3 doctors, no ansewers, etc etc. I stopped taking tramadol last saturday the pain

stopped next day. I read that one side effect was unusaul muscle pain. I cosidered this pain as bad as my M had been.

Im hope your relief comes soon and stops the pain as quickly as mine did. And again I did not think it would ever would. Take care.

rileyoday

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not right.... Empty Hi Riley

Post  Guest Mon Dec 13, 2010 10:32 am

You say you have been controlling your migraines for over a year. And that it has continued to work. What did you do.... I am very, very glad for you.

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Post  pen Mon Dec 13, 2010 11:24 am

Gail, I have just been advised that Botox can take up to 7 weeks to kick in....
There may still be hope for you...

sunny

pen

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not right.... Empty Hi Pen

Post  Guest Mon Dec 13, 2010 3:49 pm

Thanks pen. I saw the dr. who did the botox 2 weeks ago. She said because there has been no change whatsoever in my migraines that it is pretty much sure that a second treatment would not help. I plan to have a second one anyway. Just to make double sure. Thanks for your nice feedback though. Are you going to have it...have you decided yet.... BTW where did you hear that it could be 7 weeks....for me it is 7 weeks this week....

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Post  pen Mon Dec 13, 2010 4:17 pm

Hi Gail,

I heard it today from our Migraine Action group. They were telling me 5 members just had Botox from my neuro.
Two got immediate improvement. One got some in 2 weeks. Another called them today...after 4 weeks and said she is seeing some improvement. The other has given up that it just didnt work.

They told me you should allow 7 weeks. I thought it was 7 days.....
I applaud you trying again, and hope it works this time.

Pen

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Post  rileyoday Mon Dec 13, 2010 4:36 pm

Gail, i take clonodine 3 x day for M control. also it is working as an abortive if needed. {which seems to be 1 every 10 days.]

I have not read of it helping anyone else, though my Dr. had. It is low cost also.

I had it bad, it was horriable , I did not think I could make it. I cant go back. Maybe your help is at your next appt. keep trying things.

rileyoday

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Post  Guest Tue Dec 14, 2010 9:06 am

Riley: Oh, yes, I remember. You have posted a couple of times re: Clonidine. I had written the name down considering asking my dr. about it. The only dr. I have right now is my family dr. When I can get there I will ask her opinion. Thankyou for posting this. Were you on some kind of diet as well...maybe that was someone else.

Pen: thankyou. no need to applaud me. the procedure is simple. You didnot say whether or not you are going to try it.....yes, no.... Question

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Post  pen Tue Dec 14, 2010 12:32 pm

Pen: thankyou. no need to applaud me. the procedure is simple. You did not say whether or not you are going to try it.....yes, no....

I was applauding you trying again when it doesnt seem to have helped and you seemed so devastated by that Gail.
Giving it another shot........(no pun intended Razz )

Yes I am booked in in February and you can tell me what to expect when you have a moment.
Please email it to me.

Thanks
Pen

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Post  Guest Tue Dec 14, 2010 5:49 pm

i think your decision is a good one. i wish you good luck. cheers

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Post  Cathy Thu Dec 16, 2010 2:26 pm

I can sympathize with you and I often feel this way. That's what is so great about this site because no one else can understand like the people here who are also suffering.

It's just not right to have your life ruined by the pain. I've had them for 40 years and I think of all the good times I've missed. It's sure hard to figure out.

Hang in there and remember there are people who understand.

Cathy

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