My neuro called because I missed my appointment.

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My neuro called because I missed my appointment.

Post  pen on Thu Oct 21, 2010 3:58 pm

I emailed him to tell him I wasn't very hopeful of getting there Monday.
And this evening he gave me a call.

Didnt get a whole lot out of it for now, but the gist of it....
Migraine and FMS are connected.....YES he didnt say co morbid, he said CONNECTED.
No worry about rebound from Triptans unless consistently taking more than 12 a month and even then it's an individual thing.
Some people will never get rebound. I DONT HAVE IT, he said....
Told him about Diane and he said. Okay, that is what some people have to do, you have to live and if all else fails, its daily Triptans.
They are very safe, safer than migraines.....
OTC not a problem in higher quantities as long as not increasing and feeling the need for more because they work less.
He is prepared to offer me Botox in December (I have to think about this).
My migraines are likely due to sleep patterns, and yes sleep studies are rare over here (cost).
The Levadex inhaler is looking good and should be out early next year, he hopes.
I am sure we chatted more than that, but my brain is now dead for the night.

Anyway, just thought you might like to know he took the trouble to call.

Pen

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Re: My neuro called because I missed my appointment.

Post  ShelliB on Thu Oct 21, 2010 4:20 pm

Very nice of him to check in on you!
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Re: My neuro called because I missed my appointment.

Post  pen on Thu Oct 21, 2010 4:57 pm

Thanks. I thought so too.

sunny

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Re: My neuro called because I missed my appointment.

Post  Migrainegirl on Thu Oct 21, 2010 5:30 pm

That's great! It sounds like you finally found a doctor who cares and is going to work on it with you. That's half the battle.
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Re: My neuro called because I missed my appointment.

Post  LG on Thu Oct 21, 2010 6:14 pm

It sounds like you met your doctor match, Pen! I'm so happy for you! I really hope it all works out and he is able to help ease your concerns and pain. He sounds very conciderate and caring Smile

hope you are feeling well and thank you for the kind words in your PM Smile it meant a lot to me.
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sleep

Post  dawn.binks on Sat Oct 23, 2010 11:04 am

yes pen the sleep thing make sense, follow it up with him! well wait and see with interest how the botox goes for you. sadly it apparently doesnt have the amazing the results were all longing to see!
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Re: My neuro called because I missed my appointment.

Post  pen on Sat Oct 23, 2010 11:29 am

Hi Dawn...Where have you been..HA!!
We did have a good chat and I had asked him on email, if he could call.
At least he did.

I am not sure about the Botox. You know I am not very brave and this is a training session.
Its the day of my daughter's 30th and also 9 days before Christmas.
What if it goes wrong? Can it go wrong?
Not sure I want to be a guinea pig....

I just had a 7 days break from migraine after a lousy 3 weeks prior to.
I wish I had some idea how that happens. Bad/Better, I am clueless.
I have suffered to day though for the break. Migard at 8am and it took 4 hours to touch it.
It is down to about a 5 now, but keeps changing sides....

I am glad he cleared me of rebound thought, less stress.
He says it seems to be a personal thing, and he is sure that I am not getting it.
I am thankful for that. But not really any further forward otherwise.

Cheers,
Pen

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