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Hi I'm new

Post  GonzoHUNTER on Mon Oct 11, 2010 9:09 pm

Hey There,

my name is Sean and I have headaches for about 2 months straight. Just to give you some background, I have had a chromic sinus infection sice February. I have had 2 major sinus surgeries and 1 minor one since then. I also have parasomia, that is a condition that makes certain smells smell like dead bodies (I know what they smell like unfortunantley). So my gp thinks that they may triggering migranes.

So I get the iheadache app to track my head pain. It automaticlly tells me if I am having a migrane or headache based on symptoms. So far in 7 days I have had 15 headaches with 3 being migranes. I have had 7 hours of partial disability and 8 of total disabilty.

I don't have any Nauea but I have pain over my eyes and in my eyes. I also have flashng lights and light sensativity. The pain is tender to the touch to the point that it feels like I go hit in the head. I expect bruising but their isn't any other then dark circles under my eyes. I have had a ct and I came back clean. I am due to see a nueroligist next month.

I have also tried icing my sinuses to limited success l. I am on tramadol and floritan. I mix them and that reduces my bad pain frm 7-3. I feel like I want to dig my brain out with an ice pick.

I guess I just want to see if these are things you also see ? Are thy normal symptoms of migranes? What should I aks the nueroligist? I have seen an ent and he thinks it's my tonsils but they have to come out and I am worried it isn't them?

Sigh

Sean

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Re: Hi I'm new

Post  AZgirl on Tue Oct 12, 2010 12:21 am

Hi.

That's the first I've heard of the iheadache app in actual use. I don't have the type of phone that supports those apps, so I haven't used it. Anyone else using it?

I also have not heard of tonsils aggevating headaches, but I am also not a doctor, so I don't know one way or the other if the two are related. You'll have to let us know how you do after the tonsils are out.
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Re: Hi I'm new

Post  HeelerLady on Tue Oct 12, 2010 7:58 am

Hi Sean,

Welcome to the forum. Sorry you had to find us. Symptoms sound like classic migraine. We all present a bit different but you hit most of the major symptoms.

I've been battling this monster for over a year and had them every day. In the last few months, I've started getting breaks in between attacks but I know what you are going through.

As for the tonsils - that's a new one on me. I know that sinus troubles can flare them but I've never heard of tonsils. Frankly I wouldn't be surprised if your symptoms continued after having tonsils removed. If you are seeing a neurologist, do keep track of when you have pain and what symptoms you have with it. That will help them determine what is really going on and help with a treatment plan.

If you have other questions, post away. There are so many wonderful people here with so much knowledge.
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Re: Hi I'm new

Post  alli on Tue Oct 12, 2010 9:34 am

Welcome to the forum. I'm sorry that you had to find us. Migraines are no fun. It sounds like you are having pretty "normal" migraines. I have a whole host of neurological issues with attacks including hypersensitivity to smells, sound, and light to name a few.

Take your headache diary or iheadache info with you when you see the neurologist. That will give him/her a good idea of the frequency and severity of your attacks. Unfortunately there is no magic pill for migraines. Since it is a neurological disease and everyone's brain chemistry is different, it will take some trial and error to find a regime that will work for you.

Good luck
Alli
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Re: Hi I'm new

Post  lesherb on Tue Oct 12, 2010 1:46 pm

Your ENT is looking for ENT problems to solve. While you may need your tonsils out, I seriously doubt it's because of migraine. If your migraine pain is from sinus infections etc., then maybe having your tonsils out will help. Just want to warn you, having them out as an adult is very painful.
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Re: Hi I'm new

Post  Kate on Tue Oct 12, 2010 4:54 pm

I know someone who has major sinus issues and has also had sinus surgeries plus migraines. They said that the surgeries have not helped at all.

Most of my migraine pain is in the back of my eyeballs and back of my head but it changes from time to time.Right now it`s all over. Last week it was were my eyebrows are. I`ve also had that sensitivity to the head as you described but not a lot. I do get auras but not all of the time. There are other symptoms I get to. It sounds like what you are dealing with is a typical migraine.

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Re: Hi I'm new

Post  GonzoHUNTER on Tue Oct 12, 2010 5:08 pm

Thanks for all the replies. I need my tonsils out for sure but I think he was shooting in the dark about the headaches.

Interestng development was my gp refused to refill my tramadol sayin I'm taking too much even though I'm on half the max dose it says on the label. So he referred me to a pain spelicist. I have been on it 2 weeks total.

I'm like I'm not a drug addict, I have a 30 day script for liquid diladid I would fill if I needed hardcore drugs....freaking a.

So I get a new dr in thurs. They seem nice though.

Anyone have advice for going to one? I feel like a criminal. I am just planning on saying. I don't care what you give me just fix it.

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Re: Hi I'm new

Post  GonzoHUNTER on Tue Oct 12, 2010 5:13 pm

here is my log on case anyone cares ha

The patient had 17 headaches between 10/05/2010 and 10/12/2010

Headache Type
6 Migraines, 0 Probable Migraines
0 Tension Headaches, 11 Unclassified Headaches
Some headaches missed duration

Triggers
1 Heat
5 Lighting
5 Neck Pain

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Re: Hi I'm new

Post  GonzoHUNTER on Tue Oct 12, 2010 5:16 pm

lesherb wrote:Your ENT is looking for ENT problems to solve. While you may need your tonsils out, I seriously doubt it's because of migraine. If your migraine pain is from sinus infections etc., then maybe having your tonsils out will help. Just want to warn you, having them out as an adult is very painful.

Thanks for the reply
yea I am super worried about it. I have heard either it is horrible or not so bad. But after 3 surgeries I am a Pansy

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Re: Hi I'm new

Post  HeelerLady on Wed Oct 13, 2010 7:20 am

Sean,

Probably a good thing that you are seeing a pain specialist. They can help manage pain better. I'm rather surprised at your regular doctor. 2 weeks and he thinks you are taking too much? Yikes! I am under a gp's care (only because my HA specialist was a nightmare) and he's allowed me what I need to have a quality of life.

I haven't been to a pain specialist but if you lay out what the pain is, what you know that works that should be sufficient for them to know how to treat you.

Good luck.
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Re: Hi I'm new

Post  GonzoHUNTER on Wed Oct 13, 2010 6:15 pm

Hanks for the info, has anyone been to a pain clinic? My limited experense so farbit seems like they are worried about addicts using them for drugs

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tonsillectomy

Post  Mule Kick on Wed Oct 13, 2010 8:11 pm

I had my tonsillectomy in August of 1977, when I was in my early twenties and in the Air Force, long before I was ever diagnosed with migraines (I only received that diagnosis during the current decade, though I can not remember a time that I did not suffer from bad headaches / nausea).

The whole summer of 1977 I was sick with Quinsy (Peritonsillor Abscesses), that various penicillin products could only temporarily control; so Uncle Sam said, "Those tonsils gotta go."

Afterwards, my pain level was such that I was writhing on the floor of my barracks room Embarassed when I took my dose of liquid acetaminophen (back then it still contained alcohol). {I never quite believed in writhing pain, until I experienced it.} Rolling Eyes
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Re: Hi I'm new

Post  GonzoHUNTER on Wed Oct 13, 2010 8:25 pm

Haha.... That sounds horrible, I have liquid dialidid so hopefully that helps

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Re: Hi I'm new

Post  Paradox on Wed Oct 13, 2010 9:05 pm

Hey Gonzo,

Welcome. Some pain specialists don't believe in narcotics at all. After over thirty years of battling the beast and not finding a preventative that worked nor a rescue I found a neuro who was also certified in pain management and believes in not letting a patient suffer when nothing else works.

Many Drs believe that narcotics cause medication overuse headaches (MOH) also called rebounds. IMHO I think that is vastly over rated. I get rebound from certain drugs, codeine and stadol, not from all narcotics.

It can be very frustrating to find the right Dr for you.

I can't remember if you said what preventatives you tried. All good Drs are going to want to find a preventative before they go the strictly narcotic route. They would be highly remiss if they didn't. But, try to find one that isn't afraid if narcotics either. There are many good medications other than narcotics. Have you tried tripans?

My DIL has to get her tonsils out. She's not thrilled about the idea of doing it but is tired of being sick all the time.

Good luck. Oh, and the drug addict thing? If you turn out to indeed have chronic migraines, get used to it. Drs and ERs will treat you like an addict and if you tell family and friends what you take so will they. It stinks. (sorry, a rotten comment was made to me about it today, can you tell?).
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Re: Hi I'm new

Post  GonzoHUNTER on Wed Oct 13, 2010 11:02 pm

Thanks for the reply!!

I haven't tried any preventative measures yet so I am new to all of this. I will google triptipans but would like to hear your experiances .

I used to be an emt so I have seen frequent fliers who fake symptoms to get medicine. The best part was I was mostly bls so we had no good drugs.

We had one guy with a notebook full of paperwork from a fake dr saying he needed take home morphine drips or something.

I acuatlly really don't care what the give me as long as it makes me better.

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Re: Hi I'm new

Post  dcook60 on Wed Oct 13, 2010 11:49 pm

sean, hope we can be some help to you. since you said you wanted to hear experiences with triptans, here's mine.

i've had migraines for 41 years. don't let that scare ya; some of us here are long-time migraineurs, and yet we still have lives. my miracle is the triptan drugs. there are seven, and i've tried them all. two work for me, so i alternate those, in hopes that i can avoid "tolerance".

the first one came on the market about 18 years ago, and is now generic, as are a couple of others. for years and years, i depended upon samples, given out (usually) freely by my primary doc and also a neurologist. now i have a dependable supply, as my doctor went to bat for me to get MORE per month than is considered safe.

i guess i've tried nearly every class of drug known to help some people, with zero success. except triptans. i take way too many, but i haven't really any other choice. they are safe for most people. if one has heart issues, then maybe not so safe. my heart has been checked out thoroughly, and i seem to be getting away with taking lots of these, for 18 years now.

they are the only drug class SPECIFICALLY for migraines. everything else in the long list of things doctors throw at you were invented for other conditions. i hope others will chime in about their triptan use, and that you find this discussion helpful.

p.s. i have had 14 surgeries, 10 were from the neck up. 4 of those were supposed to cure my sinus/head pain. disappointingly, it didn't happen. dianne
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Re: Hi I'm new

Post  Hal on Wed Oct 13, 2010 11:58 pm

Welcome Sean,

I had my tonsils out when I was 33. It was as if I had a very bad sore throat for about a week. Then it wasn't so bad.

I have had Migraines since I was eight. I am now 63 and they have gotten worse. For the past several years it has been hit and miss with the drugs. I was on Tramadol for about a year and felt like a zombie. Finally, I just quit taking the stuff and decided to suffer the pain instead of being in a fog all of the time. Now I have some hard core stuff that I take only when the pain is really bad. If it wasn't for the pills, I would be going to the ER for the real good stuff. Yes, after 55 yrs of doing this, they still look at me as if I were a druggy looking for a fix. They always make me wait about an hour, letting me suffer, before they will give me what I need for pain. It would help if your GP would put a letter on file with the hospital that you suffer from Migraines. That way you usually do not have to wait.

Get the tonsils out and plan on eating milk shakes and soft boiled eggs or anything that will go through a straw for about a week. Also plan on not talking for a few days and get a supply of Cepacal for the sore throat. It probably won't fix the headaches (it didn't for me), but you will feel better. Then plan on a life with lots of pain and friends and relatives that just don't get it.
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Re: Hi I'm new

Post  GonzoHUNTER on Thu Oct 14, 2010 11:41 am

jeezu what surgeries have you had?

thanks for the advice on the tonsils. i plan to be out for 2-3 weeks. i know they need to come out but it blows to get them out.

they are giving me some suckers that will kill the pain supposdley

What kind of side effects do the triptans have?


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Re: Hi I'm new

Post  GonzoHUNTER on Thu Oct 14, 2010 11:44 am

i answers my own question

riptans have few side effects if used in correct dosage and frequency. The most common adverse effect is recurrence of migraine. A systematic review found that "rizatriptan 10 mg was the only triptan with a recurrence rate greater than that of placebo".[8]

There is a theoretical risk of coronary spasm in patients with established heart disease, and cardiac events after taking triptans may rarely occur.[9]

There is the potential for life-threatening serotonin syndrome (a syndrome of changes in mental status, autonomic instability, neuromuscular abnormalities, and gastrointestinal symptoms) in patients taking triptans and selective serotonin reuptake inhibitors (SSRIs) or selective serotonin/norepinephrine reuptake inhibitors (SNRIs) at the same time.[10]

At least two types of triptans (sumatriptan and rizatriptan) have been listed under the unacceptable medication by the Canadian Blood Services, as a potential risk to the recipient; hence, donors are required not to have taken the medication for the last 72 hours.[citation needed]
[edit]

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Re: Hi I'm new

Post  dcook60 on Thu Oct 14, 2010 12:00 pm

sean, my relevant surgeries were C3-4 (neck) for ruptured disc, (now with titanium plates and screws in there) 2 septoplasties, (remodeling the inside of my nose, removing cartilage and straightening septum so i could breathe) and roto-rooting sinus surgery, which took 4 hours, and found many abnormalities.

had my tonsils out when i was eight. now i'm 70. hey, i've lived thru a lot of cutting, and hope i never had to have more surgery, for sure.

as for the side effects of triptans, i have never had a single one. that's pretty amazing, when one knows my history of being "sensitive" to nearly every other drug and substance and food on the planet. i know about serotonin syndrome, but have never been depressed, so i ain't about to take antidepressants.

for me, these drugs have been total life-savers. you will find your answer, also. it may be something else, or something not yet invented. we all keep hoping and praying for better drugs for the millions of suffering migraineurs! dianne
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Re: Hi I'm new

Post  GonzoHUNTER on Thu Oct 14, 2010 10:27 pm

So I met with the pain dr. What a racket. This guy owns a xray, MRI, physical theripy, and surgery center.

So guess what he recommended? Yep some kind of surgical injection, MRI, xrays and therepy. Hahah.

It took 2 hours with a bashing migrane for him to tell me I have whiplash. After some discussion he said I have migranes and whiplash. So he put me on propranolol, toradol, floricet, celebrex and tramadol. Come to find out this may be a lethel combo of drugs bcause I am also on zoloft.

I can't take the NSAIDs in two weeks be ause I have surgery but I did get some relief with the double tramadol dose.

Has anyone take. Propranolol? I think I am going to wait to take it until the weekend to see how it affects me?



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Re: Hi I'm new

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