BBC running with the migraine gene....

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BBC running with the migraine gene....

Post  pen on Mon Sep 27, 2010 4:47 am

Sorry if this is repetition. I have an awful bug which had given me....guess what...more migraines.
Triptan every day for a week so far.....I was sent this but honestly haven't read it properly....

http://www.bbc.co.uk/news/health-11408113

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Re: BBC running with the migraine gene....

Post  Ivy on Mon Sep 27, 2010 5:26 am

This is very interesting, thanks for sharing.
The other articles that I read were not as detailed as this one.
Now we just have to wait for a cure Exclamation

I want to see my TRESK gene and tell him a couple of things that I can't write down here Wink
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Re: BBC running with the migraine gene....

Post  pen on Mon Sep 27, 2010 8:42 am

This is all over our NATIONAL news. One of our best migraine experts Ann McGregor is speaking on the national news tonight.
I have set it to record.

I wonder where I fit though. Not a family member as you know....
Where is my defective gene?
Or might it be like the one that causes diverse conditions like asthma and eczema....
Has it come out in other ways perhaps in my family...

I just hope they put the money into this, it is shameful if they dont.....
As they said on TV at lunch time..."This is BIG".

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Re: BBC running with the migraine gene....

Post  pen on Mon Sep 27, 2010 9:33 am

This article is quite a good one.
However Migraine clinic just commented that there is a genetic connection for "some".
So my hopes should be dashed?
I have always said I dont have a link, and many on here have debated this with me.
Now it seems they agree and this finding may not benefit me at all...

So what of my pain, and my fibro the other pain I feel for no apparent reason.
Can this be a victim of this Tresk as well, and if so, is this my link, as my Dad had Fibrositis...
Now I am confused and more than a little downhearted.


http://www.emaxhealth.com/1275/gene-called-tresk-causes-migraine-controls-pain

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Re: BBC running with the migraine gene....

Post  pen on Mon Sep 27, 2010 1:08 pm

Biggest news for ever and now more.

http://www.migraine.org.uk/index.php?sectionid=1201

I guess it isnt the same where you live as I dont think anyone is reading these.
It is big news here in the UK....

Are you excited?

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gene

Post  dawn.binks on Mon Sep 27, 2010 2:28 pm

yes very excited!! at last, we knew it was on its way and lets hope its a big stepping stone in mig treatment. will be watching to see where does that info take us and what do we do with it??!!
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Re: BBC running with the migraine gene....

Post  Ivy on Tue Sep 28, 2010 12:17 am

Pen,
are you sure that no one in your family has migraine symptoms?
I have recently found out that my dad has probably been suffering from SILENT migraine. He can have very bad days due to nausea, vomit, depression, fatigue, stiffneck, diziness BUT no head pain at all.
My aunt (his sister) suffers from the same symptoms. My cousin and I suffer from these typical migraine symptoms but also get the head pain. Our grandmother suffered from very bad migraine with horrible head pain.
We have always thought that migraine had skipped one generation, but recently we have found out that it did not: it just hit on my dad and aunt in the silent form.

Also, take into consideration that elder generations used to underevaluate symptoms and pain. They were kind of "stronger" and had a complete different approach towards diseases and pain. Maybe someone in your family (a grandma or granpa) had weird symptoms but never spoke about them....

The other explanation is that you've been genetically modified by aliens alien ...Just kiddin' here Very Happy


P.S.: just edited my reply to add that the news is echoing also on all Italian mass-media as a major discovery! GO UK RESEARCHERS!!!!!
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Re: BBC running with the migraine gene....

Post  jwar on Tue Sep 28, 2010 4:40 pm

I've said this before, but there's no reason you can't be the first one in your family to have the genetic mutation. DNA gets spontaneously mutated all the time.
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Re: BBC running with the migraine gene....

Post  pen on Tue Sep 28, 2010 5:49 pm

I like the Alien idea Ivy.... alien
Could explain a lot.

Actually my cousin who is like a brother to me (we grew up together) has just died very suddenly at the age of 64.
He flew to Cyprus and died the following morning.

So I have been speaking to his sister a lot about arrangements etc.
We spoke of migraine. She said to me, she doesn't understand it.
No one has them or anything like...she is 10 years older, so recalls even more than I do.
She said to me....you must be the first. Oh goodie, lucky me.... Razz

Now its interesting. Drs are always pumping away about the genetics and how there will be someone etc.
Yesterday one of our top migraine drs said on TV "Not everyone has a genetic connection".
Now, for once, that is NOT what I wanted to hear.

It isnt that dont believe in the gene, nor that I dont want to have a connection.
We just cant find one. Gone back to g.grandparents, both sides, included aunts and uncles where possible
My parents, their siblings and all of my 30 cousins....Not one....

I would be happy to find this link. Cant find another reason why I have this crap.
BUT, gotta say. Cant even find anyone who has headaches.
IBS, or yes......headaches nadda.

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fibro

Post  dawn.binks on Wed Sep 29, 2010 2:55 am

who else was it in the family pen that had fibro?
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Re: BBC running with the migraine gene....

Post  pen on Wed Sep 29, 2010 7:43 am

No one Dawn. I am the first with that too.....What a trail blazer....

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bbc migraine study

Post  Charlene on Sat Oct 02, 2010 3:10 pm

I have six generations of migraines in my family.Started with mu Grandmother,Mothe ,me all 3 of my children ,two grandaghter and one great-grandson.No help for any of us.

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Re: BBC running with the migraine gene....

Post  Paradox on Sat Oct 02, 2010 6:42 pm

Jayme, my son has an extremely rare genetic disorder. It was called a "de novo" deletion. When I asked my GP what de novo meant she said "it's Latin for "shit happens".". I loved that DR. She took away so much of my mothers guilt on what I did wrong with that one little comment.

When I look at the miracle of conception it's amazing to me that they're aren't MORE de novo occurrences and mutations.
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