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Post  Anna's Mom Fri May 14, 2010 8:33 am

On "Good Morning America" today:

http://abcnews.go.com/Health/PainManagement/managing-headaches-pain-medication/story?id=10642271

Cheryl
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Post  estre004 Fri May 14, 2010 8:52 am

This is very interesting--just after reading how good NSAIDS and other medications work if used daily. No wonder we are confused.

I came up with the "changes" on my own. Migraineurs just don't like change. I should say the head doesn't. I love change and would be bored stiff with the same routine everyday. I Have thought for a long time that all those triggers they come up with aren't the real problem and that the fact that they might have been a "change" in the ordinary routine was the problem. I just keep a stash of abortives handy when I'm going out of my "safety net".

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Post  TeriRobert Fri May 14, 2010 9:47 am

Can you point me to where you read about using NSAIDs and other meds daily? I'd really love to see it. Depending on where it is, maybe they need to be made aware of the MOH problem. Overall, the video in this article is pretty good.

Teri

estre004 wrote:This is very interesting--just after reading how good NSAIDS and other medications work if used daily. No wonder we are confused.

I came up with the "changes" on my own. Migraineurs just don't like change. I should say the head doesn't. I love change and would be bored stiff with the same routine everyday. I Have thought for a long time that all those triggers they come up with aren't the real problem and that the fact that they might have been a "change" in the ordinary routine was the problem. I just keep a stash of abortives handy when I'm going out of my "safety net".

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Post  estre004 Fri May 14, 2010 9:58 am

Teri - I've been reading so much stuff lately that I'll have to figure out where. I've come across it in a couple of places. One of my co-workers was told to take two anti-inflammatory drugs like Ibprofen twice a day everyday. She was so happy because she went 2 weeks without a migraine and then got hit. This was coming from her neurologist!

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Post  TeriRobert Fri May 14, 2010 10:20 am

Thanks! I hear you about reading so much stuff. I do the same thing; have so many bookmarks that I can't even find anything in them! Mad

As for the neurologist, sometimes I think they shouldn't be allowed to treat Migraines unless they pass a test. Sigh.

Teri

estre004 wrote:Teri - I've been reading so much stuff lately that I'll have to figure out where. I've come across it in a couple of places. One of my co-workers was told to take two anti-inflammatory drugs like Ibprofen twice a day everyday. She was so happy because she went 2 weeks without a migraine and then got hit. This was coming from her neurologist!

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Post  estre004 Fri May 14, 2010 10:29 am

Teri - I've come to that conclusion myself about neurologists. I have to admit that the best advice I've gotten so far for my migraines has come from my GP, not my neurologist. Anything my neurologist has given me to try is because I suggested it after doing my own research. The only thing he was good for was writing the prescription. The knowledge came from me.

If I figure out where I read the articles on daily pain meds being a good thing I'll be sure to send right away.

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Post  Anna's Mom Fri May 14, 2010 10:32 am

Teri, did you read Dr. Grumpy this morning? Smile

I always wondered about the difference between taking Indocin versus other anti-inflammatories. What makes Indocin "acceptable" as a daily preventative?

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Post  TeriRobert Fri May 14, 2010 5:24 pm

Cheryl,

Yes, I did read it. I read it all the time now and love it. Maybe I missed something, but I don't remember seeing Indocin talked about as a daily preventive. He did talk about Inderal.

Indocin isn't acceptable as a daily preventive except for hemicrania continua. Actually, one of the diagnostic criteria is that hemicrania continua responds to Indocin.. I've seen it prescribed at a low daily dosage to prevent ice pick headaches, too, although that still leaves the potential for MOH.

Teri

Anna's Mom wrote:Teri, did you read Dr. Grumpy this morning? Smile

I always wondered about the difference between taking Indocin versus other anti-inflammatories. What makes Indocin "acceptable" as a daily preventative?

Cheryl

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Post  Anna's Mom Fri May 14, 2010 5:54 pm

Oh, he didn't mention Indocin. His post on the dummy migraine doc was pretty funny this morning Smile

I was asking about Indocin because there was discussion of anti-inflammatories on this thread.

A "well known" HA clinic had Anna on daily Indocin for MONTHS, Teri, even though it was doing diddly squat for her head pain.

It truly tore up her stomach.

I was just wondering (at this point), their rational for having her on something that potent (and worthless). And never taking her off it.

Daily ibuprofen may have been better!

Thanks!

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Post  pen Fri May 14, 2010 6:13 pm

Thanks for the link Cheryl. Interesting article and video.

My neuro has suggested a month of 2 Diclofen or Naproxen. No longer.,
This is to try to break the cycle of the migraines coming in the night.
One of our best headache neuros has found it works well for quite a few people.
I believe it is to reduce inflammation form the constant pain. It is initially only 1 month.
As I understand it, we do not succumb to MOH in one month.
Neither do we necessarily get it at all.

But how do we know, when half the medics dont seem to know either about it, or how to diagnose it.
To be honest I think too much and too little is made of MOH
More information should be out there so that any dr we encounter can be sure we know about it, to watch for it.
BUT it isnt all of us; they keep saying...including the article in this thread, that it is 2%
Too many to ignore, but not enough for the level of dread they hand us.

We dont need this kind of extra stress agonising over medicaton when we are in such pain,.
We need proper guidelines to help us determine if we may be victim to this or not.
And we need information regarding the alternative secondary headaches and their possible causes.
I guess in short we just need better information in plain English so that we are equiped to best help ourselves.

When I ran a short and simple poll on here, we did have at least two people who had had it.
They were kind enough to describe what it was like and how they knew.
Others then commented that if that is what it is like, no we dont have it.

But frankly, if the medics cant decided, what hope is there for us, and many people have gone through Hell trying to get by with no medication, only to find no change in their pain. Because there can be other reasons for it....

We need that information, and it needs to be consistent.

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Post  AZgirl Fri May 14, 2010 7:22 pm

In defense of indocin, that is one of my mainstays.

I take 2 75-mg capsules daily unless I have severe pain, then I opt for 2 100-mg suppositories. I have had no adverse effects on my stomach. The only other pain med I take is norco/hydrocodone. I have been taking indocin for about 3 or 4 years, except for a 6 month break when I was on warfarin/coumadin and the two are not allowed together. I would never give up my indocin. It doesn't take the entire pain away, but it is effective in helping me get through the day.

I don't believe it is giving me rebounds because I did have exactly 1 week of zero head pain in April. It was right after having my shunt adjusted. If I could only figure out/control the whole CSF pressure build up I'll be golden.
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Post  Anna's Mom Fri May 14, 2010 8:19 pm

That's good to know, Lynelle!

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